fear

[RoyceNewton]

There are things to fear and things and there are things to manage. I would suggest that Relapsing-Remitting ms is a condition not to be feared today, merely managed.

Today in 2018 there are Disease Modifying Therapies (DMT) that can slow the progression, there is coloured underwear for women. As a man I only get grey, but I have a sharpie and I can draw silly pictures if I really want to. I do sometimes. there are eating and exercise strategies. When very unexpected problems occur there are tablets, infusions and if necessary surgeries. I have had three so far. Not a cure, Trigeminal Neuralgia will be back someday but when it happens it happens.

What I saying, is that "YOU" have no need to be in fear, apprehensive of course, we all have that, it is only natural. "YOU" would be rather odd if "YOU" did not have some apprehension. This is a very very sneaky and tricksy illness. One hundred per cent answers are few and far between. Honestly, they do not exist. I am sorry I lie to "YOU" ONE does exist.

This is a "DOABLE" illness.

It really only takes "YOU" coming to terms with there being no cure, "YET" and "YOU" starting to learn the techniques to manage this illness. Always do things that help "YOU". Do everything that "YOU" can possibly do to make your life easier. I like to have a plan. I wake up at the same time every day, take my Tecfidera, heat the morning tea, exercise, start to use the computer and on and on. I have habits and patterns. Things that I know and control, .and because of that they are things that I decide. They give me some power and lessen my fears, and if they do not tun out the first time the way I intended that is okay. I accept and expect unforeseen hiccups. I do not stress changes I just adapt As "YOU" progress along your ms journey "YOU" will learn things about yourself and others. Just because attempt one ended in not exactly your planned result is never a reason to not try attempt two and thre and attempt..... But, this is your disease and these are your choices. Let your fears subside a little and find another way around the problem. Never stop looking until "YOU and only YOU" are satisfied with the result.

The choice is yours, it always is. Does ms break "YOU" or do "YOU" learn to be like bamboo, and "BEND". It is ok it's only RRms and "YOU can do this.

Royce

each day just doing it my way and putting the fear behind me

[Midgey_Midge06]

I am big on my “routine”. Cuz it does give me that control i dont have otherwise. Now i have to learn the bend but dont break thing

[RoyceNewton in reply to Midgey_Midge06]

right on Mighty Midge06

[Midgey_Midge06 in reply to RoyceNewton]

😁😁🤗🤗

[carolek572 CommunityAmbassador]

Hey RoyceNewton,

Coping with ms is doable. A daily routine is very good. It takes a lot of stress away. And less stress is very good. Do whatever it takes to simplify your life. Like you always say, it is doable. There is a lot available to help make your life 'livable'. Adapt.

Keep Smiling,

Carole

[RoyceNewton in reply to carolek572]

it is ok to just say Royce, I answer to it most times Yes it is doable

[carolek572 CommunityAmbassador in reply to RoyceNewton]

Okay Royce

Please accept my apologies if I do not, because some habits die hard! I have a routine, you know!

Carole

[RoyceNewton in reply to carolek572]

no apology needed, just letting you know that you can be friendly

[carolek572 CommunityAmbassador in reply to RoyceNewton]

Thank you

[Fayezdayz]

I was diagnosed with MS in 2000. I was RRMS for many years, but eventually cancer center at SPM ass… I did everything “right”

I took all the latest and greatest medications, exercised, ate right, etc

I went for many years doing pretty much what I always did.

Always have a positive attitude always!

I still do all of the things I mentioned, but it is harder now.

As we all know, location of the lesions are what cause are disabilities.

I have multiple lesions Brain, C-spine, T spine. They are all in active, but as my neurologist says, I have a heavy lesion load, which makes things difficult, like a lot of spasticity, and foot drop. I am on the maximum dose of oral baclofen. It doesn’t seem to help much anymore. I am looking at other options

My entire point is, we can do all the right things, and still have difficulties with This disease. I am often complemented on my positive attitude. I will never change my attitude. That is the only thing I can really control.

My two cents

[RoyceNewton in reply to Fayezdayz]

certainly true ms or not

[Fayezdayz]

Excuse the typos… Siri is not behaving herself LOL

[RoyceNewton in reply to Fayezdayz]

I understand no problem thanks

[Mssusan]

great post...

[RoyceNewton]

thanks

[Juliew19673]

Thanks Royce!

[RoyceNewton]

no problem thank you for reading it

[lbenmaor]

I'm big on routine also. However, when I do something out of routine I am very proud

of myself. It may appear small to others but to me it's a big thing. We should all be proud of what we do every day!

Leslie

[RoyceNewton in reply to lbenmaor]

that is the way to do it, little steps

[lbenmaor in reply to RoyceNewton]

Thanks for the encouragement!

Have a great weekend!!

Leslie

[RoyceNewton in reply to lbenmaor]

thank you, you as well