First infusion

[judymax]

I had my first infusion on Wednesday and it went well and zero problems. Next day I felt great so played 9 holes of golf which may have been a mistake. My legs got real weak and shaky. Does anyone know if one is supposed to take it easy for a few days after infusion?

[Iona60]

Horray for you! Seems like they would tell you those things. Someone one here should know.

[greaterexp]

I can't answer your question, but I pray the weakness subsides quickly.

[erash]

judymax glad infusion went well...keep us updated

By the way. Ocrevus?

[Yooper]

Judymax: I was not told to take it easy, but it took me 2-3 weeks to get back to where I was before the infusion. We need to keep going as long as we can if it's not hurting your health. Good for you!!

[judymax in reply to Yooper]

Thanks for the reply. I think when I get infusion #2 on the 10th I'll lay around for a day or two and see what happens.

[WAshingtongirl]

Welcome, judymax , we hope you find us a safe place to share, vent, ask questions, and build new friendships. As for the infusion (I assume Ocrevus?), I'm unable to answer, but we have a number here who can. Praying you regain your strength and take it a little easier until you do. 😉💕

[bavery207]

judymax assuming you are talking about Ocrevus, I was not told to rest, but was really tired for about 5 days after 1st infusion and did take it easy. For me, the second (half) infusion did not hit me as hard and I was up and going on the day after. I remember others saying they were tired for up to a week after both infusions. I hope all goes well for you.

[judymax in reply to bavery207]

Thank you for the reply. I should have been clear that it was Ocrevus infusion. Hope my second one goes as well and I will rest the following day. I probably should not have played golf second day but I felt so good!

[YLGram]

I think feeling good for us is like an aphrodisiac. Glad it's working for you. Good luck.

[RobertCalifornia]

After my my first in fusion of Ocrevus I was really tired the next two days and then was back to normal energy levels. After my second infusion on a Monday I rested the whole day on Tuesday. On Wednesday my wife and I left on a 15 day R.V. trip to Yellowstone. No problems at all.

[judymax]

I hope my second infusion goes as well as yours did!

[dianekjs]

I was advised by my neurologist, an MS specialist, to take it very easy for a day or two following infusions. However, I was totally wiped out for about a week both times, so really didn't have any choice! I returned to my baseline from that point, and am seeing some positive changes now, about 3 1/2 months from when I started. The infusions are a shock to the system and some people react strongly, others very little, so try to listen to your body and don't overdo things while making the adjustment. Best of luck.