Lemtrada, anyone?

[jennymb8675309]

Anyone on Lemtrada for more than a year? Im new here - Thanks!

[greaterexp]

I don't have any experience with Lemtrada, but let me welcome you!

[jennymb8675309 in reply to greaterexp]

Well thank you 😉 Are u taking an MS drug as well?

[greaterexp in reply to jennymb8675309]

Yes, I take Copaxone, but am thinking about Ocrevus.

[Kenu]

Welcome to our crazy 😜 group of MSers👍. I am not on Lemtrada, but I have been on seven different DMT’s thru twenty three years and currently on Aubagio. My last two MRI’s were stable and no side effects 😁. Have been on it for the last fifteen months 👍. 🙏🐾 Ken

[jennymb8675309 in reply to Kenu]

Hi Ken - how is the Aubagio doing for u?

[Kenu in reply to jennymb8675309]

I have been on it for fifteen months with NO side effects 👍. Also my last two MRI’s were stable and no relapses 🙏🐾😉 Ken

[jennymb8675309 in reply to Kenu]

Seems like a keeper to me 😊

[REDLIPS44]

Hello and welcome, I am year 3 past my first infusion with Lemtrada, it has not helped with the progression I did have an MRI of brain and spine in Dec. and there were no lesions, but you can have progression without lesions. Since Lemtrada I use a rollator 24/7 and have just received my AFO for drop foot. There are a few groups for Lemtrada on Facebook the bad thing is you have no where to look about not so happy stories about Lemtrada they just show all the good/happy stories. I have had my blood tests to start OCREVUS, hoping it stops the progression. Good luck to you and whatever you decide to do.

[MS_Indestructible]

jennymb8675309 welcome to a nice wonderful group. I am on Rituxan [an off label use for MS] for several years and love it. Ocrevus is the "new version" of Rituxan that is specifically FDA approved for MS [RRMS and PPMS]. You could do a search for "Lemtrada" in this community by typing it in the search box at the top right hand corner of these pages. While you are at it you can browser many other posts that interest you. and/or formally introduce yourself with a few details for us to "meet you". I have the more progressive form of MS and was dx in 2007. I am now 60 yrs old ~terry

[jennymb8675309 in reply to MS_Indestructible]

I’m hearing good things about Ocrevus! Do u think u had MS years before u were actually diagnosed?

[MS_Indestructible in reply to jennymb8675309]

yes, as far back as high school in the early '70s. I had several episodes throughout the years undx till 2007.

[jennymb8675309]

My memory is CRAP! I think I’m doing really well on Lemtrada but I don’t believe nothin’ unless it’s in writing 😉