Anyone from Florida?

[Lyssi458]

I just started my first dose of ocrevus last week. I received an email from ocrevus that they will be holding a seminar type thing for people with ms wanting to be on ocrevus or currently on ocrevus. I think it will be a great way to connect with others. It’s free, you just have to register online.

[Jesmcd2 CommunityAmbassador]

I'm not, but how are you feeling Lyssi458 ? Are you home yet? 🤗💕

J🌌

[Lyssi458 in reply to Jesmcd2]

I’m feeling better, finally home! My belly button is non existent though ☹️

[greaterexp]

Thanks for the info. I wish I were in Florida!

[chairbear]

I live in Fl and have been taking Ocrevus for the past year... seem to have deteriorated in terms of symptoms.

[IFwczs in reply to chairbear]

Please read my post "Ocrevus." I said I didn't feel any balance or gait improvements on Ocrevus like other people have been reporting. Read greaterexp's reply to that post, it helped me a lot.

[chairbear in reply to IFwczs]

Thank you for your reply. I wish you all the best in your quest for relief/stabilization.

Keep the faith

[IFwczs in reply to chairbear]

When did you have your first full Ocrevus dose?

[chairbear in reply to IFwczs]

June 2018. Probably nothing more than coincidence but I've been on a steady decline since beginning ocrevus...heavy doses of burning/numbness, spasticity, etc.

[IFwczs in reply to chairbear]

What does your neuro say? What kind of MS do you have? And what were you taking before Ocrevus? I apologise for a million questions.

[Horse714 in reply to chairbear]

What were you on before Ocrevus???

[chairbear in reply to Horse714]

Tysabri

[dallas343 in reply to IFwczs]

Me neither in fact I became worse and had elevated liver enzymes

[Horse714 in reply to dallas343]

Hi my name is Lynn and I’m on ocrevus my legs feel heavy to I had the first 2 doses and I’m wondering if I should go back to my other m.s. med.

[dallas343]

I had my first dose April 2018 and after two initial Doses my doctor stop the treatment because it elevated my liver enzymes. I did not feel any moment where any of my symptoms got better while on ocrevus