Lowdosenaltrexone.org
They are saying this could possibly be a great non-evasive, very low side effect type treatment for our M.S. symptoms. A whole lot better than any pml inj. Especially if we're jvc pos! I might ask my neuro. Bout it... We'll see...☺
i have been taking LDN--low dose naltrexone for about a year along with my regular therapy, tysabri. i found adding LDN to my regimen produced more energy or less pain after a month or two of starting.
Thnks dis! Appreciate the reply. I refuse to get tysabri, have PPMS & might have jcv pos. Am looking at augio. Yhx again.
Yes I would ask your doctor first before you take something you heard about any where.
Okey dokey, thnx ssdw. 👍☺
True, ok thnks Lois. How much was it? Might have to wait for it till im S.S.DI. approved...🙀
The "jury" has not yet decided on whether LDN is effective or not - many PwMS say it is, others say it did nothing for them, but I would suggest you don't take too much notice of some of the "I got out of my wheelchair and walked again" stories you will come across. Do your "homework" thoroughly and inform yourself properly before making a decision. LDN is not really a viable substitute for other MS drugs, but it can help with relieving some symptoms - this varies with each individual as to how much, if any, help it provides. You also need to make sure you don't take it if you are on or need to take opiod based pain killers - it stops them from working. I am not sure what the situation is with taking LDN with the new crop of MS drugs (such as the oral meds) so you need to check carefully on this (I don't have to worry about this 'cos I'm not any any of the usual MS drugs).
Some neuros don't mind if you take it as long as they don't have to prescribe it, others are more cooperative and will prescribe it (but these are definitely in the minority), but most of them ridicule the whole thing. If you are in the USA and decide to try it, but have trouble finding someone to prescribe it just google Skips Pharmacy - I think they have a list of US prescribers. I think the LDN Research Trust in the UK has a list of UK prescribers. LDN is extremely unlikely to ever be properly tested in clinical trials as it is a common drug which is out of patent so there''s no money to be made out of it, but it has very limited side effects at the doses that PwMS take, so some PCPs/GPs will prescribe it for their MS patients.
Hi I know there is a pharmacy in Glasgow Scotland that does it. I'm in England and I'm quite curious about LDN. I'm on Tysabri and I have active RRMS nice to meet u 😊😊😊😊😊
Thanks, nice to meet you too...😍👍
I have a prescription for it but I haven’t been able to come off nucynta (an opioid) to try it!
I tried LDN years ago because I saw a few naturopathic doctors recommend it. I took it for about a year and did not see any difference in any of my symptoms. My disability continued to progress and I continued to have relapses...and I was on a DMT at the time. Good luck. I hope you have a different outcome.
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