Newbie Here!: Hi everyone I’m new to this... - My MSAA Community

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Newbie Here!

Nvprp21 profile image
21 Replies

Hi everyone I’m new to this community! I was dx 2 years ago but have been dealing with symptoms for about 12 years. I have two beautiful girls 16 & 4! I’m still working full time as a phlebotomist but slowing noticing difficulty at times. Right now going through Occupational Therapy to help me along. I’m on my third dmd, Aubagio, and praying it’s the one for me. I’m looking forward to meeting everyone here and helping support you all emotionally as much as I can.

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Nvprp21
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21 Replies
elaineinqueens profile image
elaineinqueens

Welcome!! I am pretty new here myself, but I can tell from all the posts I have read, that this is a group of really caring and supportive folks!

Kenu profile image
Kenu in reply to elaineinqueens

@elaineinqueens, love your dog 🐕👍🐾🐩 Ken

elaineinqueens profile image
elaineinqueens in reply to Kenu

Thanks Kenu!! Love yours too! What kind is he (or she)?

Kenu profile image
Kenu in reply to elaineinqueens

She is a Goldendoodle with the biggest heart 💜 Rozy brings us so much happiness to our family 👍🐩 Rozy (80lbs.) has a little brother, Sniper a Bachien Friez (20lbs.) They Love each other so much and play well together 👍. Love those furbabies🤗🤣😂🐾🐩 Ken

elaineinqueens profile image
elaineinqueens in reply to Kenu

Ken, sounds like you've got a great "pack" there!! We are getting our second dog soon and I'm hoping they will get along. It will be a chocolate lab puppy that we've already named Timber. Never had two at once, I must be crazy for taking this on!LOL

Kenu profile image
Kenu in reply to elaineinqueens

I think that two is easier than one 🤷🏼‍♂️. The older one explains to new one what to due and they keep each other company, especially when you’re gone👍 Puppies always seem to adapt 😉🙏🐾🐩 Ken

elaineinqueens profile image
elaineinqueens in reply to Kenu

Thanks, Ken, for the very encouraging words!! Will let you know how it turns out when puppy gets here!

pihokken profile image
pihokken

I just joined recently but everyone seems really caring. It’s a good place to ask questions and to vent if you need to!

Kenu profile image
Kenu

@Nvprp21 Welcome to the crazy 😜 group of MS community 👍 Great place to vent and have someone that understands. Lots of great information on DMT’s and other drugs that help and side effects to. 🤷🏼‍♂️👍🙏🐾🐩🐕🐶 Ken

jimeka profile image
jimeka

Hi and welcome. This forum is a place you can come to for any kind of support, it's great for information, you can learn so much. It is also a place where you can keep your self worth, as your contributions, in whatever form, may help someone else, and it's always nice to help others with this fascinating disease, named by greaterexp . Take care, blessings Jimeka 🦋

janetb1968 profile image
janetb1968

Hi Nvprp21 lovely to meet u im pretty new aswell was diagnosed last December. Hoping to start Tysabri on 8th March best wishes from bitterly cold snowy England xxx 😧😧😧🤶🤶🤶🐧🐧🐧❄❄❄❄❄❄

Nvprp21 profile image
Nvprp21 in reply to janetb1968

My oldest daughter was born there and is actually living there with her father. He’s in the military. She’s loving it and has been traveling. I’m so jealous but I couldn’t keep her from this great experience.

janetb1968 profile image
janetb1968 in reply to Nvprp21

Wow! That's amazing bet u miss her lucky girl doing travelling xxx 😊

greaterexp profile image
greaterexp

Welcome! With this fascinating and strange disease, we all have different symptoms and experiences. The great thing about this group is how we all bind together to lift one another up with encouragement and information. We really become friends quickly.

We look forward to getting to know you better.

Raingrrl profile image
Raingrrl

Hi Nvprp21 ! Welcome! There is a broad spectrum of people dealing with MS here so you will always find understanding and support. We are a wide range of ages and experiences. MS affects everyone a little differently but we all understand the chaos it can cause.

Nvprp21 profile image
Nvprp21

Thank you everyone for the warm welcome.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

I will just toss out my own shout out. Hi Nvprp21 and welcome. 😊 You have arrived at a great and busy month.

So grab a chair ana cupo jo and have a look around. And please ask away, and just jump in!

J🌠

No one bites but maybe Doubled51 but that's cause he's doing solumedol 😊

Doubled51 profile image
Doubled51 in reply to Jesmcd2

Welcome to our crazy world. You have found the greatest group of understanding and caring people there is. Us that suffer with this crazy disease understand things that others can’t. So again welcome to our world.

And if I bite I won’t bite hard.😂😂😂

Donnie

Fancy1959 profile image
Fancy1959

Nvprp21, it's Fancy1959 and I would like to officilly welcome welcome you to our extended family! You have found a safe place to come ask questions, voice concerns, or simply talk to people who truly understand what you are going through. This chat room is full of some of the most compassionate, caring, and kind people I have ever met. Remember the more you post and answer questions from other posts the quicker we will get to know you and you will get to know us! We have much we can learn from each other. Make sure you get a hold of jimeka as she is our birthday club ambassador and she needs to know your birth date so she can add it to our birthday Club. Just look for a question she posted and reply to her your birthday, name, and new information. Congrats on working and fighting this beast we live with. It also sounds like you have a beautiful family. I can't wait to get to know you better! Take care until we speak again. And I would like you to remember one thing in that is that together we are stronger! Fancy.

bxrmom profile image
bxrmom

Nvprp21 Welcome to this wonderful group of caring and supportive people! Have a look around, ask questions, vent! I'm Jessie, I was diagnosed in 2006 with rrms after stress of buying my house then had to file for disability in 2008 after a bad relapse from the flu where I couldn't go back to work. Luckily I won on the first try with no lawyer!! Look forward to meeting you and chatting more.

Jessie

Royjr profile image
Royjr

Welcome

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