Living with MS

[SBLinda]

I was diagnosed with Ms in 2012. I was on the Medication Rebif and had to change because it was not working for me. Now I'm on Gilenya and it seems to be working for me. My neurologist put me on Ampyra to help with my walking also. It seems that the Ampyra assistance program was terminated Dec. 31, 2017. This medication is so expensive that i"m trying to find another assistance program to help with the cost. Having trouble with the insurance company just ordered a 15 day supply and it cost $430.68 half of the 60 day supply.

[Royjr]

I don’t know about the Ampyra assistance. Ampyra didn’t work for me and I had to get off Gilenya because it was affecting my liver and making my white count too low.

[pmbevac]

SBLinda I believe the Ampyra assistance program was only terminated for Medicare patients. I'm on it and they did cover the cost, or what I needed to meet my out of pocket expenses, except for a $40 co-pay that I paid. What may happen is the insurance company may not apply the amount Apmyra pays towards your deductible. That was in a letter they sent out in December. mrsmike had a post concerning this a few weeks ago. Have you talked to the Ampyra folks?

[SBLinda in reply to pmbevac]

No I haven't. But that is a good thought. Thank you.

[Fancy1959]

Hello SBLinda, it's Fancy1959 and I would officially like to welcome you to our extended family. You have found a safe place to come ask questions, voice concerns, or simply talk to people who truly understand. I, too, started out on Rebif and it did not work for me either. But we all must play the insurance games unfortunately. Keep looking, sometimes there's charitable organizations, or nonprofit organizations that will also help with a copay assistance. That was how I got assistance for my Ocrevus drug and my 4 hour long infusions. I have never been on Gilenya so I don't know what else to tell you unfortunately. Your neurologist office should no all the avenues you might pursue to get assistance. So check with them and keep digging. Until we speak again take care and keep digging for that assistance. I look forward to talking to you soon. Remember together we are stronger!

[Morllyn]

Welcome to the group SBLinda !