New Here...

[miwido]

I have had a RRMS diagnosis for about 6 years. Was on Copaxone for years and just moved to Ocrevus. Had my first half infusion last Tuesday with moderate side effects. The itching was the worst, but I got through it! Also had some fatigue and body aches, but they didn't last but a couple of days. I go back for my second half on July 16th and looking forward to (hopefully) less side effects. We shall see!

[Royjr]

Hello and welcome.

[Fancy1959]

Hello and welcome to our awesome chat room minor, from Fancy1959. We're glad you have found and joined or extended family!

We promise to provide you with a safe place to come and ask questions, voice concerns, seek information, or simply speak to others who truly understand what you're going through! With our unique perspective walking hand-in-hand alongside of you we can give you insights and ideas that few others can. I too am on okras. I took my first half dose last September in this coming up October I will come back for my third dose. I am anxious for the week to be over and for me to be honest for a year-and-a-half to two years to see if I get the positive results that so many have gotten from this DMT. My disability level is rather high and I'm hoping to regain some much-needed use of my hands, Improvement in my balance, and more bladder control! I don't know what it would feel like not to have to worry with these three major issues that I deal with each and every day! I can't wait to get to know you better. The more you reply and respond to post the quicker we will get to know you and you will get to know us! I am searching it there is much we can learn from each other. Please take care until we speak again and remember together we are stronger! Fancy.

[kdali]

Welcome! I’m waiting for mine to get set up. I hope your next dose goes well!

[RoseySawyer]

Welcome! 😊❤🌷👍

[ssdw1958]

Hello I am ssdw1958 sorry to hear you have this disease.

[janetb1968]

Hi nice to meet u 😊😊😊😊 xx

[MSMommy]

Hello miwido I'm new here but also have RRMS and also took copaxone and am now taking Ocrevus. I had my first (half) dose back in February, then August. I was just wondering if you took any Benadryl and or Claritin before getting your infusion? I took both as well as Tylenol and didn't have any reactions. Just thought it might help if you didn't use last time maybe try the next time. Good luck to you

[miwido in reply to MSMommy]

The infusion nurse gave me tylenol orally, then a dose of steroids and benadryl via IV before they started. About halfway through, the bendaryl wore off and they had to give me more. I guess it just was a reaction that hit me particularly hard. Hoping that the next one isn't as bad! Thanks for the info. Michele

[greaterexp]

I’m glad you found us here. I’m grateful you’re sharing your Ocrevus experiences, as so many of us are considering it.

[miwido]

Hi - I am not taking the LDN, but will check into it. Thanks for the info! Michele

[lbenmaor]

I'[m glad the side effects didn't last a long time.

Welcome to our Group!

Leslie

[Jazzyinco]

Welcome,, kewp us posted, about the next 1 k.😌

[hairbrain4]

Welcome! This is an awesome place to ask questions, give updates, vent or what ever you need to do. We understand what its like living with MS.

I'm waiting for insurance to approve the ocrevus. I'm currently on copaxone 40, hate it. Hope your 2nd infusion goes better.

[miwido in reply to hairbrain4]

Good luck on your approval process. I hated Copaxone 40 also. I was so excited when they came out with it because it meant less injecting. My site reaction was worse when I moved to the 40mg. My second half-dose of Ocrevus is Monday. Will post on here and let everyone know how it goes.