Lemtrada

Looking into having this procedure done. I have done a little bit of research. I was wondering if anyone has any feed back. At this point I am looking for the right regigimen that agrees with me. I am not comparable with to many oh the MS medications. And I am A candidate for contracting PML. So I running out of options and have limited income. So any feed back is welcomed. I hope everyone is having a less painful day. Happy Spring and don't forget to move your clocks forward this weekend.

3 Replies

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  • Thanks for the reminder and good luck

  • Hi, I'm in the hospital right now on day 4 of round 1. Day 1 went well, just a headache in the afternoon - 2 cups coffee and ibuprofen fixed it. Low appetite probably contributed. Day 2 was fine, just some loud people in the same room made it difficult to relax, but they were on chemotherapy - I just kept my mouth shut. Made sure to eat a decent breakfast and lunch - good day. Day 3 - no complaints. Sailed through the day. Day 4 is going well - I'm either lucky or the Claritin, Benadryl, Pepcid at home and Zofran, Solumedrol, Benadryl, Lemtrada at the hospital routine is just doing it's job. I definitely feel drugged, but not terrible. Very optimistic at this point. I'll wait a bit and follow up with any worthwhile updates.

  • Thanks for the info. I hope you are doing well. I am on a waiting list now for the meds only 2 places here in my area administer the meds so I have to wait at least a year. Ugg.

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