I was diagnosed in 1999 with multiple sclerosis and have been through so much! The chronic neuropathy pain has become unbearable!
MS pain!: I was diagnosed in 1999 with... - My MSAA Community
MS pain!
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Hi, what type of ms do you have and what medications do you take that help you? I have PPMS, found out October 2010, but apparently I have had it for 20 years prior to finding out. How have you coped with the pain? I find microwave heat pads distract me but then you have to watch that you font overheat, as that can trigger fatigued. Any suggestions on pain relief are always welcome, blessings Jimeka
For neuropathic pain and itch, try l-theanine. If you can, get Pure Bulk's brand so there's no filler. Take 30 minutes before bed to help with sleep, too.
Dose - start with 1/8 tsp. It's sweet and you can mix in a shake or applesauce or whatever. Go up 1/16 to 1/8 tsp each night until you hit a level that works. Might be as much as a tsp but can be cut a bit later.
Wonderful supplement!
I was diagnosed in 1999 too! I didn't experience any neuropathy until about a year ago. Now its a nightly occurrence and drives me crazy. It makes falling asleep really difficult sometimes.
What is your current regiment for pain management?
Pmbrnami, it's Fancy1959 welcome you to this awesome chat room. If your current neurologist is not successfully managing your pain have you tried other neurologist? Different neurologist can attack your pain management from different angles and even the slightest change sometimes can make a 4huge differences.
Pain management is best handled by your neurologist. You can try different basic over-the-counter meds that don't require prescription but you have to be careful because even herbal medications and over-the-counter meds can have adverse reactions with the prescription meds you are on.
I take neurontin for the tingling in my hands and arms. If I forget to take it the tingling is more severe and sometimes become painful. My current therapy, Tysabri, also helps the tingling somewhat.
What stage are currently in with your MS? And do you know what therapy you are on? Last question is are you currently taking any prescribed pain meds to go along with your therapy and other medications? All these are considerations that need to be looked at before any adjustment is made in your pain medicines by you and your doctor.
I am glad you have come to us with your concerns and questions. We can give you a lot more input when the questions are not dealing with medications. You have found a safe place full of caring, compassionate, and kind individuals. We are just a post away if you need us. I would like you to remember that together we are stronger! I look forward to your next reply. Please keep us informed as to your pain management and how it progresses.