Supplements for C-myelopathy

[rideabike]

I started taking B1-500 mg and B complex-50 mg. and B12 sometime ago when I didn't know what was happening. I added other supplements like lysine, tyrosine, phosphatidyl choline and Vit. E, D, krill oil, zinc, etc. and without these energy and ataxia are much worse.

I just joined so wanting to know if anyone is taking something that really makes a difference esp. with lack of oxygen in the brain.

[Susanemily]

So sorry, Are you taking magnesium? I understand magnesium is needed to activate all the B vitamins.

[rideabike in reply to Susanemily]

Yes, I take it at night Magnesium bis-glycinate...helps me sleep and definitely decreses muscle spasms.

[Hidden]

Hi there

When you say "lack of oxygen to the brain", what do you mean exactly - do you feel dizzy & faint?

Have you had recent blood tests to see if you have e.g. anaemia as it would be advisable given that too many vitamins & minerals can be as harmful as too little.

Myelopathy is a neurological disease & neurological illnesses can cause fatigue. Although fatigue is not a "known" symptom - the research hasn't been done yet, it is for many folk in the support group on Facebook, including me. I struggle with fatigue more than I do with pain & I find it a difficult symptom to manage.

What I will say is is that a chat with your Dr may be in order because there are many things that could potentially be causing your issues which may or may not be related to myelopathy.

Good luck

Shirley (mod)

[rideabike in reply to Hidden]

Hi Shirley...thanks for your interest. I don't feel dizzy or faint and have not for many months although dizziness was a problem. It can happen but less severe. It's more like a feeling I've had for at least 5 years and I first noticed how bad it was when I was in a movie theatre with friends. I felt out of place, out of the space we were in. I wasn't connected to the movie or them and the feeling has never gone away, lasting 24/7. One name being apathy or anhedonia fit the picture somewhat but it's also physical and my head feels much like when you're coming down with a terrible flu, kind of like pressure but when the nose and sinuses start running you realize what it is. But I never have that relief. ICP or intracranial pressure interests me but I will have to wait until I see the Dr. I do not have a GP since moving.

Subsequently other problems mounted up, one on top of the other. Sleep problems, swallowing disorder, breathing disorder, ataxia.... wobbly when I walk but the B supplements I've been taking seem to help a bit but not enough. I do have more energy and less fatigue and balance sometimes is better, tinnitus is worse if I don't take them....but not sure exactly which ones are doing that. I think maybe all of them.

I do not overdo the dosages. One lab showed too much iron and I haven't taken it for years and rarely eat red meat. I must eat soft foods or get an intensely uncomfortable gut and muscles seem to cause it in the chest and gut area. I have muscle twitches more and more and unusual sensations of tingling and feelings of pressure all along a hand or just a tremor now and then in that finger or thumb on one hand.

I was diagnosed with visual spatial dysfunction and oculomotor dysfunction. All of the "myriad of symptoms" one neurologist said I had seemed to stump him but I feel they are all connected and since then had the MRI but haven't seen a neuro-surgeon.

Most of these don't seem to follow other people's symptoms or do they. Since I'm new on here I don't really know. Anyway I've described it as best I can but do appreciate if this opens up more conversations.

[SheilaDugan Administrator]

Magnesium is known to help, I also take calcium to keep our bones as strong as possible, Folic acid according to the Myelopathy.org podcast on Food and Nutrition.

[rideabike]

Thanks...every little bit helps.👍