UTI -Advice please

[Monkeyfeet1]

I’ve got a terrible UTi . I’ve been given antibiotics and am drnking lots but wondered if you have any suggestions?

my main concern is lack of balance and I can’t walk with my walker inside ( I use a wheelchair outside)

Thank you 🙏🏼

[thedjsupreme]

IIts only words but I'm sorry to hear this. This disase is cruel.. sending hugs

[Monkeyfeet1 in reply to thedjsupreme]

Thank you words mean everything! We’re the only ones that understand x

[Bluebarn123]

I'm sorry to hear that you are having these problems.I am a carer for a lovely lady with MSA and I find that D- Mannose helps prevent frequent uti's.She takes this daily,combined with drinking lots of lemon barley water and cranberry juice.When she does have a UTI our GP will prescribe a course of antibiotics which lasts for at least 10 days to ensure the infection is totally cleared I hope this helps you

[Monkeyfeet1 in reply to Bluebarn123]

Thank you! I take d-. Manoose daily and drink lemon barley water but haven’t prevented it this time xx

[GreenJo]

As already suggested I give TC DMannose at night as prevention - more frequently if he has infection. He's catheterised- have also found changing night and leg bag every 5 days instead of weekly has helped.

[Monkeyfeet1 in reply to GreenJo]

Thank you 🙏🏼

[Monkeyfeet1]

thank you everyone 🙏🏼

[DemelzaMSAT Moderator Staff]

Hi, sorry to hear this. Unfortunately infections can have a real impact on mobility. Please do contact your MSA nurse if things do not start to improve soon. Sounds like you are doing all the right things. I hope you feel better soon, Demelza.

[Monkeyfeet1 in reply to DemelzaMSAT]

Thank you’

[esj20]

Hi there,

The only thing I can suggest is cranberry juice, I believe it helped me when I had a UTI.

Regarding balance, now that’s a complete pain in the proverbial!

I’ve taken to falling over a lot now which has its comedy moments, especially in public!

I just make sure I use my walking sticks / crutches everywhere now but, I’m taking possession of my new electric wheelchair next week so I’ll become motorised and a complete danger in public.

Keep on keeping on and maintain your sense of humour, thinks of you and everyone else who has to deal with this dratsab of a disease!

Yours

Alec

[Monkeyfeet1 in reply to esj20]

Thank you, Alec. I’ll try the cranberry juice! Xx

[esj20 in reply to Monkeyfeet1]

I loved pineapple juice after being told that it contained an enzyme that helped stopped me chocking but I do not think they meant one Ltr per day. 🤔🤔🤔😬😂

After a visit to the bladder nurse, she pointed out the error of my ways telling righty so that citric juice was actually a diuretic and to switch to cranberry juice!

I was told alcohol was a diuretic too but……I’ve not taken up pineapple juice again 😂

[Monkeyfeet1]

you always make me laugh, Alec 😢

[Spangle2000]

Sorry , no advice to offer but I’m sorry you’re feeling so bad. Sounds like you’re doing all the right things. As esj20 says ‘keep on keeping on’. x

[Monkeyfeet1 in reply to Spangle2000]

Thank you. I’m feeling much better today. My fever seems to have gone. X