condition

[Groovyag]

I was diagnosed late June?

I do not how regressive the symptoms and this varies from patient to patient?

After diagnosis what happens at 3 months, 6 months and 9 months in?

I am 55 and been on a CPAP machine for over 10 years.

I started nasal breathing at night and my skin condition has improved so much.

Thanks

[Whitefeather1]

Good morning, my understanding of MSA is that everyone with the disease progresses differently, people can have all symptoms or not and at different times. It's a bit of a minefield really.

My friend was diagnosed August 22 being diagnosed with Parkinson's in 2019. She sadly passed away January this year. Others in this group have managed with their symptoms for many more years.

Good luck on your journey.

Caroline.

[Groovyag in reply to Whitefeather1]

Hi, Thanks for replying. Sorry to hear of your friend

[Paul_and_Sue_Wood]

Hi

As we always do say to new members sorry and glad you are here at the same time.

Any questions ask away and members will offer personal advice. I would also recommend visiting the MSA trust web site where there is a wealth of information and support available.

To answer your first question no one knows how long your journey will be or what changes will happen as everyone is different but accepting and adapting are key .

Hope this helps to start with.

Paul and Sue

[Groovyag]

Thanks for you reply. I am fortunate work are aware of my condition and allowing me to continue working. Yes, I agree everyone is different and this includes making changes.

[Whitefeather1]

Sadly my friend passed away in January. Being positive was our mantra 😊 positivity attracts positivity 😊

[Groovyag in reply to Whitefeather1]

Sorrry to hear about your friend