Rheumatology appt: So ANA tests positive for... - MPN Voice

MPN Voice

10,886 members15,201 posts

Rheumatology appt

Looolooo profile image
2 Replies

So ANA tests positive for Sjorens but only a few antibodies so very mild. Want to see me in a year. Already take vit d, tumeric and fish oil for aches and pains and drink more water for dry eyes and mouth. New to HRT too. This has resolved all other symtoms. So not too worried although I will need to read up on whether to have normal covid/flu in jection this year, after epguy's bad experience.

Written by
Looolooo profile image
Looolooo
To view profiles and participate in discussions please or .
Read more about...
2 Replies
EPguy profile image
EPguy

ANA test is not specific to Sjo, and it can be + without any A-I disease. Did you also get the SSa test? I had mild elevation of SSa but raging Sjo. Anyway these can all be negative and still have Sjo, so antibody tests alone aren't decisive, quite frustrating for the ~30-40% pts that are SSa neg. This makes getting the Dx a big pain.

If you want a more certain Dx a lip biopsy is usually done for sero neg pts. With the IFN risk it may be worth doing. Otherwise keep an eye on any changes.

Unfortunately many Rheums are not up to date on Sjo, compared for example Lupus or RA that they are trained for. Similar to some haems on MPNs.

On the vaxes, this year's flu vax is pointing to a low match on a predictive criteria:

"2024 Southern Hemisphere seasonal influenza vaccine reduced the risk for influenza-associated hospitalization among high-risk groups by 35%"

cdc.gov/mmwr/volumes/73/wr/...

so priority might be best on the Covid vax. In general flu vaxes aren't great on effectiveness, I think I posted on "imprinting" that may explain some of that. I will never get another flu vax with current technology, but that is just for me.

Looolooo profile image
Looolooo in reply toEPguy

Thank you EP guy. They did do another test but I can't remember what it was and they also want to repeat my bloods. ANA was 38. I don't think I will get the flu vax. Hope you are keeping well.

Not what you're looking for?

You may also like...

Appt at Guys and St Thomas

Hello, I had my first appt at Guys yesterday and it was incredible from the minute we walked into...
RubyTea profile image

Lightheaded, rheumatology appointment

Hi from last week or so ive been getting quite lightheaded alot in days only latest a few seconds...
Jody00 profile image

Guy’s telephone appt on Tuesday. Advice and questions to ask please.

Morning everyone and happy Easter if you celebrate. I’m so grateful for this board and the...
SarahPV profile image

Had my 2nd appt with my Haematologist today

As an update from my earlier post, we are now back in Australia after 3 months in South Africa....
Pachena profile image

1st Hematology Appt Next Week

Hello all, this is my first post and full disclosure I am literally brand new to all things MPN...

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.