Stem cell transplant

[Cja1956]

I just wanted to let everyone know that I made my decision and I’m going through with a SCT. I have been seeing a transplant doctor at Dana Farber in Boston for about a year and he feels I’m strong enough now to have one. Now we have to find a donor and I have to start making preparations. We are shooting for April or May.

[Meatloaf9]

Only the best to you on your next phase of this journey. I feel sure you will do very well. Keep your eye on the prize at the end of this next phase, a potential cure! It must have been a difficult decision. Best to you.

[socrates_8]

Naturally, nothing but the most positive energy being sent your way Cj...

Pls try to keep us all in the loop as you progress through this next phase...

Best wishes always...

Steve

(Sydney)

[Solyesh]

All the best as you start this journey!!!

[SRH55]

Sending best wishes & positive thoughts your way.

[Simon96]

Fingers crossed for a successful donor search. Best wishes, Simon

[hunter5582]

Wishing you success and all the best.

[william-Indo]

Pray for you and wishes you all the best.

Keep us update pks.

Cheers

[Blonde25]

All the best and hope all goes well lots of love and healing being sent your way x

[MFBMT2011]

Made that decision 14 years ago.Happy to help if you have any questions. Best wishes. Chris

[Johnpainter]

wishing you all the best of luck.🤞🏼

[Maurabawn]

Sending you all that is good. Please keep in touch. X

[lizzziep]

Wishing you all the best!

[LFCLove]

Wishing you all the very best for the next phase of your journey to you and all your family and friends. (I’m now +41 days post SCT).🫶🏻

🤓

[RoundTheWorld in reply to LFCLove]

Good to see you post LFCLove - was wondering how you are doing. Have you more of an appetite back? Wishing you well.

[LFCLove in reply to RoundTheWorld]

Hi, yes I think it’s finally getting there, not quite clearing the plate but almost.

Some days are better, some worse……par for the course I reckon! I posted just after I was discharged so will leave it for a while..All the best to you too.

G

[RoundTheWorld]

Hope a great donor match comes up quickly. Wishing you all the best.

[Mazcd Partner MPNVoice]

sending you all best wishes, Maz

[JAB6]

wishing you the very best !

[ciye]

Sending you best wishes 🤗

[Hopetohelp]

wishing you all the best x

[Mtnlife]

Best wishes!

[jointpain]

Hoping it all goes to plan, wishing you success. Xxx

[Threelions]

You’ll be in my thoughts & prayers throughout your journey

[DiveGoddess]

Dear CJA, Godspeed on your recovery ❤️‍🩹. That is a tough decision and I hope having made it brings you some relief. Good Lick also on finding a well matched donor. Please keep us updated as you can. 🌸

[CanadaG]

Hi Cja, while it was likely a very difficult decision for you to make, I think you have made the right one. I hope all goes well and you are cured!

[DJK12]

Very best wishes and I hope a donor is found quickly.

[Minify]

Good luck as you start your journey. Please keep us updated.

[GardNerd]

Best of luck to you on this leg of the journey! You'll be in our thoughts!

[BeOutside]

Many positive thoughts flowing your way!!

[Cja1956]

I’m overwhelmed and so grateful to all of you for all of your support. This is such a lovely group to be part of. I still have another seven months and I’ll keep you informed of any developments.

Warm regards,

Cindy

[saltmarsh]

Wishing you great success on this journey. Very hopeful this will open a new door for you.

[George1976]

best of luck to you. That’s a great hospital.

[Bluetop]

All the very best with this.

[FreemanSaviors]

Good choiceI'm 64 and got diagnosed with Primary Myelofibrosis July 2023.. After eventually seeing the stem cell transplant team they were very confident in finding me a good match.

They found a doner a 100% match.

Ive been through a lot to get to where I am now and very glad and lucky to have had the transplant.

I'm confident they will find you a well matched doner..

Good luck with everything

Gary

[Cja1956 in reply to FreemanSaviors]

Where did you have it done?

[FreemanSaviors in reply to Cja1956]

I live in Newcastle England.. My transplant was carried out at The Freeman hospital Newcastle.

[Cja1956 in reply to FreemanSaviors]

Oh, I didn’t realize you were in England. I’m glad you got through it and that you continue to improve.

[Stripecat]

Hi Cja

All the best for the SCT. Do you mind me asking how old you are?

[Cja1956 in reply to Stripecat]

I’m 68. That’s one reason why I’m doing it is because two different transplant doctors told me I could lose my window of opportunity. I was diagnosed with post ETMF in 2019 and my risk is intermediate/high according to the scoring tests.

[jmctrek]

Hoping you will stay strong and optimistic throughout your journey. Will be praying for all to be well for you.

[Bullace]

All good wishes for a successful outcome.