anyone else with extreme high TSH levels ????

[Ggrana3192]

I had my thyroid levels checked yesterday and my TSH is 62 !!!!!!!!! My mpn specialist is making me stop Besremi until I see an endocrinologist .

Anyone else ever have such a number line that ? Doctor was very concerned

[hunter5582]

Sorry to hear about the elevated TSH level. While I have not experienced this issue on Besremi, it is a known risk. No one can say why you are experiencing this issue without a proper evaluation. Kudos to your doc for checking and responding to the finding.

Please let us know what you learn and how you get on.

[Ggrana3192 in reply to hunter5582]

I’ll let you know what follows hunter 5582.

I just am so upset ! My platelets are FINALLY in the normal range for the first time in over 10 years and this has to happen. And I’ve been tolerating the 500mcg pretty well.

Stay well

[Emmyroos]

I am not on Besremi but on Pegasys. Similar thing just happened to me just last month also. My level was 16 at an annual bloodtest. I just started Levothyroxine and halved my Pegasys dose. 4 weeks later value is down to 9. Going back in another 4 weeks to see for dose adjustment. MPN doc said that 5% of Peg users may develop thyroid issues - Likely similar with Besremi.

[ainslie]

the increase in TSH is common with interferons, but it’s likely easily treated with thyroid meds and when you have thyroid tuned up you should feel better. TSH should really be no more than 2 and Free t3 should be in upper quartile. On thyroid meds your TSH may go to near zero which is fine.

[ChillyAsh34]

I have an under active thyroid I take thyroxine ,my levels have remained normal on hydroxycarbamide over the 2 years I have taken it