Found this in my other support group. Hope you can open it:

[IrishHiker]

mympnteam.com/resources/und...

[EPguy]

Thanks for the link.

My blood numbers are good but count me in on:

<<ringing in the ears, headaches, [and] fullness in the head>>

<<numbness and tingling and sensations typically occurring in the fingers and the toes>>

[Heather270240]

Thank you IrishHiker for the link. A very interesting and easy to read and understand article. My platelets are too high 987 I'm on Ruxolitinib which doesn't appear to be working. Yes all the symptoms they mention.

[Scaredy_cat]

Maz : can you tell us how mpnvoice interacts with myMPNteam?Trying to read the privacy conditions, I'm not sure about its status

[Wyebird]

Thank you it’s really good

[Mostew]

Such a clear explanation . Great to pass on to friends a d relatives to easily understand Thank you

[Solyesh]

IrishThanks! I very much loved the statement by Dr. Kuykendall:

“Just because we can normalize a number, that only matters if that actually makes the patient healthier,”

This is the mantra of my MPN specialist as well - we are not shooting for any specific target number (as far as platelets are concerned) but rather to make sure to avoid any potential negative externalities (thrombotic events) and to improve overall quality of life....