The knowledge of this group as a whole, is so much more than I could have hoped for. It is clear how important it is to search out a good Hematologist, and not to stop until you find one. Each time I am feeling depressed or low about this chronic condition, one of you pick me right back up.
Thanks again!
That is what is great about the FORUM for MPN Patients. We all have each other's best interests at heart, and support when we need it... 
Steven
(Sydney)
Glad you’ve found your online pick me up! Everyone of us needs a boost from time to time. Keep well.
I couldn’t agree more! This forum has helped me through many difficult times- it’s just good to know there are people out there who totally understand and can support when needed.
A big thank you!
Am in total agreement with you - we are rare + I have found more help, empathy and information here than all the ‘experts’ put together. A big thank you from me to the forum as well. Anne-Marie.
I agree. It has helped me so much.
Agree 100%! This is a great group of people who provide support and information that we all need as we deal with our MPNs. Wishing you all the best on your journey.
Thank you!
Hi jschwab, totally agree with you. The forum was a lifesaver for me when first diagnosed and also during the ups and downs of the MPN merry go round! Love to all you wonderful people on it.xx❤️❤️Kindest regards Aime xx😻😻
Let me join the chorus -- I agree completely. I don't know what I would have done without everyone here -- you all have given me more thoughtful and useful advice, support, care, laughs and connection than any of my docs. I'm so grateful I found you all! ❤️ 💕 💝 Best, Kim
Me too!! I have been so thankful for all the wonderful help I receive from everyone & it stopped me from feeling so alone. This group is totally amazing and although few of us ever actually meet, I feel that we really care for each other like family. A lot of love is shared on this forum. Katie
I've found so much more info and help on here than via the hospital! It's brilliant!
Hi Jschwab and everyone! I ditto all this above! I I feel so great reading all your thoughts and info and love being able to share my knowledge and receiving yours. We are a beautiful partnership and blessed to have each other! 😘
This is all a bit new to me..
UPDATE: Would You Like to Have a Patient Led MPN Support Group in Devon and Cornwall?
Happy New year and my best wishes to all of you!
People say to me ,oh really ,,you don't look ill.even on my way out of the doctors office .again this week ..
Has anyone else experienced ridiculous waste in the NHS? (this is relevant to us all - read on)
