I'm afraid I'm not in a position to give advice but my thoughts are with you. I am likely to be having a stem cell transplant in the next year or so too. Very, very best wishes to you all x
I can’t give you advice but there are a few people on this site who have gone through it. Hopefully they will respond.I also just want to send my support. I understand it’s a very stressful time. I was told in September of 2019 that I would probably need an SCT in 2-5 years. I’ve listened to some webinars of people who have had one, and they all said they even though it’s a difficult process, they are happy that they did it and that while in the hospital, they were well taken care of by the staff.
I wish your husband well. You will get through this. Please keep us updated.
Wishing you both all the best. SCT is a very real chance for a better and longer life for some with MF. It turns out one of my colleagues has/had MF had one several years ago. He is doing quite well. He bikes long-distances and has a very positive outlook. Hoping for the same for your husband.
Had mine 10 years ago in London. It’s tough, risky but worth it. More than happy to answer any questions. Happy to talk. Can send you my story that covers diagnosis to three months post. Happy to do anything that helps. Chris from Watford, UK.
The only mf transplantee I could find back then was a Canadian named Gord Caster who was twenty years out. He had a transplant from his daughter, quite experimental, that was successful. The link below will take you back to a chat on here with a few transplantees from a couple of years ago. I will pm you re story. Chris
A further update… we found out today that his cancer has progressed still and he now has AML. He will be admitted into hospital this weekend to try to stabilize the blasts (currently at 50% in his bone marrow) so they can proceed with the transplant. Sigh. This is hard.
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