Is it possible to get travel insurance with a diagnosis of Myleofibrosis?

[Monaco50]

I have recently been diagnosed with MF after 10 years of ET. Horrible shock and still coming to terms with it - been in tears most of today! Anyway have decided that as I am currently not on meds and feeling well that I am starting my bucket list early!😀

I have holiday insurance with my bank which will cover me for Europe but not for the US. My best friend and I would like to go to Vegas for our joint 50th birthdays ( not yet obviously but when Covid is more manageable) Has anyone with MF managed to get holiday insurance to the US? I imagine it will be horribly expensive but I am more concerned as to whether it is possible to get the insurance or not. Hope that everyone who reads this is well and is having a good day.

Many thanks x

[champ30]

I went to Italy in2019 with my husband and no problem.... don't know about US.I have MF and MDS

Regards Lynn.

[Monaco50 in reply to champ30]

Thanks for responding Lynn x

[809123]

Most insurers will cover as long as the condition is underwritten. I get cover for CLL but the cost is 6x what my partner pays. Shop around and use the larger reputable insurers. Cover is more important than cost should something go wrong.

[Monaco50 in reply to 809123]

Thanks for your reply. I totally agree, cover is more important than cost X

[Mazcd Partner MPNVoice]

Hi Monaco50, we have a list of companies that have been recommended by people with MPNs, though we can't guarantee that they will provide cover:mpnvoice.org.uk/wp-content/...

Best wishes, Maz

[Monaco50 in reply to Mazcd]

Thanks Max, very helpful x

[Grizly]

It is a shock to be told you have MF especially when you have planned to travel. My bank travel insurance would not cover my condition and found it hard to get anyone to cover me for MF even though I am on no medication or requiring transfusions. I was given a number to phone and they put me in touch with JustTravelcover.com you answer a few questions about your condition and they come up with a few policies which you can choose from. I have used them to go to China Japan and South Korea on a cruise and I went to the Caribbean but because we flew it to Miami that really bumped up the costs. So I try to avoid the USA as the costs can be quite high. Hope this helps and best wishes for your future travels.

[Monaco50 in reply to Grizly]

Thanks so much for your reply, very useful information x

[Uzza]

Hello Monaco50...I was unable to get any insurance for my trip, two years ago.

Cheers Uz

[Monaco50 in reply to Uzza]

Hi Uz, thanks for your reply. Really sorry you were unable to get cover x

[tracey13]

We with insurance 4 UMy husband has post PV MF we had no trouble at all. We used to be with stay sure but this company was a lot cheaper for the same cover.

My husband is on ruxolitanib.

Tracey

[Monaco50 in reply to tracey13]

Thank you so much Tracey13 x

[tracey13 in reply to Monaco50]

You will need your platelet count and I think your HB count when you ring up for a quote .

[tracey13 in reply to Monaco50]

Hi just going through our insurance documents we are with Insurance With

I remember now we got quotes from insurance 4 U and insurance with was a lot cheaper

Web page

[Monaco50 in reply to tracey13]

Thanks so much xx

[Innessant]

Yes. Just declare underlying condition. Chance are it will be better to get o. a plane and return for treatment. This accident insurance is for catastrophe .