Hi woodyfingers, I find when I’m due a venesection , my first symptom which is getting worse is my temperature control. My husband will be frozen in the car or house and I’ll be absolutely cooking! Not pleasant I know! I hate standing in queues, in shops, etc as I start feeling light headed too and dread making a fool of myself by fainting.
I find cotton clothing with layers which I can take off the best option and cool drinks help also, particularly water.
when I first was diagnosed with PV + Jak2 I was on Venesections as well , I too had these really hot spells when my hair would drip with water as if I had just come out of the shower ,in the meantime my friends around me were as cool as cucumbers. I would go to bed with cold wet flannels wrapped around my feet and never covered my feet at night as well.
I have had PV+ JAK2 four years now and but have 'grown out ' of these hot periods so there is hope at the end of the line. Hope the same happens for you .
Well, I too have PV JAK2+ with a tendency towards high platelets. My problem is opposite to yours. Despite the warmest UK February since records began I am still muffling up with several layers! It needs to get above 25° for me to shed layers!
As regards venesection, I feel a little out of it for a couple of hours but then I feel better than usual for a number of days. We are all different though - be interested to know how venesection affects you, with luck it'll be the same as me - makes you look forward to them!
Hi. I also have trouble with getting too hot (and it’s not menopause) but I’m ET jak+. I carry a small portable fan with me, ideally one that mists cold water on me. It helps. Katie
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