Transplant Date Set

[Hatchie]

Yesterday, I received my transplant date—27 February. It feels quite surreal, but I’m choosing to stay focused on the ultimate goal: being cured.

At just 44, I know I’m younger than most MF patients undergoing transplant, and I’ve decided to take this step now, before I progress further. Looking at me, no one would guess I’m sick—I look fit and healthy, and even I find it hard to believe sometimes.

I have an unmatched unrelated donor, and I’ve questioned whether waiting for a matched donor would be better. But since I’m no longer responding to Rux or Hydrea, I believe now is the right time to move forward.

I've been asked to consider the following clinical trial - IMPaCT BMT: Improving the Microbiome with Prebiotics in Cancer Treatment. Has anyone participated in this trial?

I’ll keep the group updated as I go through this journey. Thank you all for the support—it means so much!

[Sprat19]

Good Luck. Young is good , hopefully means your body is fitter and more resilient. Take each day at a time. Another chapter in the adventure of life.

Hope all goes well. Intrigued by microbiome and cancer study

[LFCLove]

Hi matey, as I’ve said before, keep positive! We’re here to listen. Your age is in your favour too. Every good wishes for the 27th. Keep us posted.

G

🤓

[SDG123]

Best wishes and best of luck!

[Mazcd Partner MPNVoice]

hope all goes well for you, best wishes, Maz

[hunter5582]

Wishing you success on this stage of your journey.

[dbus1417]

You’re in our prayers. God willing you will be good as new and you can come on here to tell us all about it.

[Cja1956]

I wish you all the best in your transplant journey. I’m probably going to be doing mine in May so I’ll be interested to hear how things go.

[PT99]

Very best wishes. I’m on a very similar journey with mine scheduled for sometime in April. Sounds like there’s a few of us in the same boat!

[babbittybumble]

Wishing you all the best, you have some amazing doctors in Australia.

[Simon96]

Best wishes from across the ditch ...Simon (6 years post haplo SCT, happy and thankful)

[Gipsy123]

Good luck with your transplant: 🤞🤞

[ETinNYC]

Wishing you all the best Hatchie. Do let us know how you get on and know we are all cheering you on and supporting you, every step of the way. Think good thoughts! Hugs from NYC.

[JAB6]

Wishing you the very best on your SCT. Hope you can find the perfect donor match.

[socrates_8]

Best wishes Hatchie...

[kamiilos]

Hi Hatchie, wishing you the very best in your journey.

[Pachena]

I’ll watch out for your updates to see how you are going, Hatchie 🤩

Sending hugs and best wishes for your days, weeks and months ahead 🌼

[Leighcox85]

good luck with your transplant like you iam a younger patient I was diagnosed with primary mf at 24 unfortunately my journey was not easy and I had many complications and developed many other chronic illnesses so many transplanters turned me down as I was to high risk but I fought and last year I had transplant on the 28/04/24 got my cells on 8/05/24 I had a perfect unrelated match my consultant said we had go for perfect as we had so much against us to begin with it was the toughest thing I have ever done chemo was easy no problem I took it like water but the vod sepsis cdiff and gvhd wasn’t great but de sdcc lite all my complications I made it through and my age helped me massively my body was a lot stronger when everyone else was bedbound I was walking around so I hope it will be the same for you Iam now 100 percent donor no sign of disease but my numbers are still very low I just need make cells I was 39 at transplant so about the same I hope you keep us updated I would love read how you flew through in the next few months which hospital are you with if you dont mind me asking

[dnaleor]

Good luck!