Our view of last week's LA fire: My husband took... - MPN Voice

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Our view of last week's LA fire

EPguy profile image
43 Replies

My husband took this picture from our backyard when it got close as I rushed home. There was quiet panic on our street at that time. One benefit I had was a full distraction from the Sjogren symptoms as I prepped the house.

We know people who lost their houses but the fire did not get nearer to us than seen here. We would have left in our micro RV. One big thing when evacuating is to take your meds along. Replacing Bes or Rux would likely get hassles of too early a refill. Rux esp cannot stop dosing suddenly. I keep my pill collection in one small long box.

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EPguy profile image
EPguy
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43 Replies
Ovidess profile image
Ovidess

what a nightmare!

Spanelmad profile image
Spanelmad

Glad to here your safe and well and organised to move in a hurry!

EPguy profile image
EPguy in reply toSpanelmad

We're not that organized, my box of pills is more to keep them from covering the whole countertop area. But I realized the extra benefit, and it's a good idea for anyone in a fire zone or other "minutes left" emergency.

Spanelmad profile image
Spanelmad in reply toEPguy

Hope your taking it easy as I know your symptoms will have gone nuclear. With all the stress!!

EPguy profile image
EPguy in reply toSpanelmad

One good thing about MPNs is they don't tend to wild swings over minutes. A-I's aren't so kind. It is indeed a bad week.

I wish Rux had some anti Jak-4 (Tyk2) in it. It's only Jak1 and 2. Tyk2 is looking promising for some A-i's.

Spanelmad profile image
Spanelmad in reply toEPguy

Yes wouldn't that be helpful! I'm struck down with th a bout of tendonitis at present.

Mazcd profile image
MazcdPartnerMPNVoice

so glad that you both ok.

RoundTheWorld profile image
RoundTheWorld

Scary stuff. Glad you are safe.

Cja1956 profile image
Cja1956

So glad you both are safe. My niece lives in Woodland Hills with her husband and baby and they had to evacuate for a few days, but luckily their house was not affected and they are now back there. But it was an extremely stressful situation.

EPguy profile image
EPguy in reply toCja1956

Glad they were ok. We remained in the yellow zone (evac warning) In the mandatory areas there were national guard keeping everyone out.

C_Anne_Orange profile image
C_Anne_Orange

Oh my gosh! How incredibly frightening! So glad you were spared. Hoping the weather changes soon for all of you out there.

EPguy profile image
EPguy in reply toC_Anne_Orange

It won't be really over till there is some rain, we're driest winter ever so far I think. Australians know a lot about this too.

saltmarsh profile image
saltmarsh

Nice that you were able to stay safe. Good luck with addressing the symptoms you're having.

EPguy profile image
EPguy in reply tosaltmarsh

I seem to be paying the price this week. Lots of bed time.

hunter5582 profile image
hunter5582

hope that you will not need to evacuate. Glad to hear that your are prepared. Stay safe,

EPguy profile image
EPguy in reply tohunter5582

We keep the hill well cleared but if the worst happens it would be from our neighbors who have plenty of flammable stuff.

They say the places likely to burn are those that did before. But with climate change a lot of rules are falling.

Jellybean129 profile image
Jellybean129

So glad to hear you are both okay, the pictures we saw over here in the UK looked awful. It sounds like you were well prepared.

Best wishes to you both

Gill

Anag profile image
Anag

The whole world was watching. This “quiet panic” well described. I’m so glad you and your home remained safe, but I’m so sorry about your friends’ homes! Be well. Anag

Anouchka profile image
Anouchka

Glad to hear you’re doing ok and are safe.

Aldebaran25 profile image
Aldebaran25

Keep safe! What a mad situation, luck of the draw and you may be untouched or destroyed! We all feel for your communities and hope it will calm down very soon . Hopefully some wise measures for the future will be taken.

EPguy profile image
EPguy in reply toAldebaran25

Agree on the wise. There needs to be stricter rules for neighborhoods, We don't really have adjacent neighbors but mine have lots of burnable stuff next to us.

RedCardRob profile image
RedCardRob

We're glad your both okay. Our son and wife live and work in San Fran and he was keeping us up to speed as a friend lives your way.Earlier today he spoke of taking a rest from the inauguration and walking to the beach (about 6 miles) in shorts and t-shirt which is most unusual. He does miss the rain sometimes.

Stay safe

EPguy profile image
EPguy in reply toRedCardRob

Bay area had the Tubbs fire to the north, also lost thousands of homes which were not even in hills. It's a worldwide problem with no instant solutions.

Bluetop profile image
Bluetop

Horrific! So pleased to hear your house was untouched and I take your point about what are 'essentials' in an evacuation situation.

EPguy profile image
EPguy in reply toBluetop

The local news has stories and instructions on accessing lost meds, but things like Rux and IFN likely are more complex. I know Incyte offers emergency pills when there is temporary trouble. I nearly had to use that service as I switched Medicare plans.

william-Indo profile image
william-Indo

Keep safe pls

ETket profile image
ETket

Thinking of you all and terrified about the lack of urgency with tackling our changing climate.

EPguy profile image
EPguy in reply toETket

Agree, it's quantifiably measurable via ocean acidity and air composition. The Dx is clear.

lizzziep profile image
lizzziep

Wow! Glad you’re safe and hope you stay that way! Hope your symptoms have settled, stress must make them worse. Hope all goes well.

EPguy profile image
EPguy in reply tolizzziep

Symptoms are up since, to reword a post title of mine, "coping with some hope".

KLCTJC profile image
KLCTJC

I am so glad you are ok! I can’t imagine how scary and terrible all of that is. Hopefully there will be some relief soon.❤️. We will be praying for you! Just so glad you were able to get out and are safe.

EPguy profile image
EPguy in reply toKLCTJC

We actually stayed put, most the neighbors left. I relied on the wind forecast and we got lucky. The emergency is over, till the next one.

KLCTJC profile image
KLCTJC in reply toEPguy

So glad y’all are ok. Praying their won’t be a next time!

Meatloaf9 profile image
Meatloaf9

Can't imagine how scary that must have been. Glad you are all alright. Keep the faith. Best always to you.

Bikelove profile image
Bikelove

I’m so sorry you’re going through this…glad you are safe!

We have a friend with a son that had to flee his Santa Monica apartment in a hurry, sick with a high fever…

Very smart idea about your meditation storage…

Stay safe…

nightshadow profile image
nightshadow

Glad that is as close as the fire got to you. Our house was one of 6 lost on our street. Total devastation started two streets north of us. We are lucky that we moved in 2023 and were renting the property. Fortunately all are accounted for on our street. One of our neighbors stayed behind and was able to save the house to the east of ours. Most of our closest friends have been spared to date, but my husband knows of about 40 people from work who lost their homes. This really brings home making sure you have a go bag, with backup medications if you can.

Before and after of home in Eaton Canyon
EPguy profile image
EPguy in reply tonightshadow

That is as real as it gets. Sympathies for the loss, even if it's your rental. Doing ok to find a new place?

From the local stories, staying greatly increases the odds of saving a house, and of dying. Like everything, a trade off. I installed a real 1" fire hose a few years ago, at least the FD could use it if we were away.

On the meds, one option is to keep them in a single box. I have that just to keep them contained but realized how useful it is. But IFN is more complicated.

nightshadow profile image
nightshadow

Oh yeah, we moved many months ago and fortunately the tenants got out safely and our excellent management company found them a new place to move into in February. My husband has the same problem with medications - no back ups allowed.

LT55 profile image
LT55

Wow! Glad you are safe and home is untouched. And good advice about the meds.

originalmyndzi profile image
originalmyndzi

Way too close for comfort!! My youngest son's boyfriend is from Encino area so we've all been following this fire very closely since it spread. I'm happy to hear you and your family are safe, and hope all the resources needed to rebuild flow into the area quickly and effortlessly.

EPguy profile image
EPguy in reply tooriginalmyndzi

Some parts of Encino were closer than we were. Glad they were ok too. There's another big fire to the north today.

mhos61 profile image
mhos61

Hi EPguy.

Glad to hear that you escaped any damage to yourselves or your home. I must admit when I was watching it unfold on the news you did come to mind.

MaggieSylvie profile image
MaggieSylvie

We are well aware, here in the UK, of the fires in California. Watching tHe News with horror. How will so many people find homes?

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