Blood results

[catwoman2015]

Hi all happy new year , Anyone been told they have raised macrocytic in full blood count ? My platelets are raised yet again after a routine blood test via Gp I have another one before I see heam end of Feb I fear he will need to put up my HU it doesn’t seem to be working for me anymore past year many thanks Holly

[Inca]

Hi Holly,

Yes ,I have had that several times,my blood is tested monthly...It doesn't seem to be a very serious problem,not always there!

HU has stopped working for me,so I now am tested every two weeks.

Not quite used to the Jakavi yet,but blood is getting better.

Don't worry about the Mac things ,next time they probably will have melted away....our very odd maladie does very odd things,,Best wishes Sally

[catwoman2015 in reply to Inca]

Hi Sally nice to hear from you , for some reason the healthlocked app won’t send any reply’s or posts I write been like it for some time so I gave up ! But today I went through google instead and ‘it’s better ... was you put on Jaff because HU didn’t lower platelets then ? Hope your not getting too many side affects with it , I don’t know much about that drug .. I wish you all the best Sally Holly x

[Inca in reply to catwoman2015]

Actually it was the Reds that would not come down,took more and more Hydrea,then everything went pear shaped ,I was really poorly and in hospital before Xmas.My platelets are fairly normal ,sometimes drop very low.So been on Jakavi just 3 weeks,so a wait and see game.

Assured that my P V has not moved to M F which was first worry.

Weird disease Holly and we are all so different,what a pain not getting onto site,a few people have said the same I believe.Bestxxx

[catwoman2015 in reply to Inca]

So sorry to hear what you went through , yes we are all different eh that’s for sure ,it’s a complex condition you take care wish you well x

[mhos61 in reply to Inca]

Hi Sally,

sorry to hear of your recent hospitalisation. I know that you have been struggling for awhile. Let’s hope the jakavi works well for you.

It must at least be reassuring that your PV hasn’t progressed to MF. That must have been worrying for you.

Take Care

Mary xx

[Inca in reply to mhos61]

Thank you Mary,I did think I was about to reach the pearly gates!!!

My Dr has just called,my blood test yesterday shows my platelets are very low...so here we go again,more tests...was just hoping to be better...you keep well Sally xx

[Aime in reply to Inca]

So sorry to hear you’ve been unwell. E hugs sent to you. Kindest regards Aime xx😺😺

[Inca in reply to Aime]

Thanks Aime,we never know what is round the corner do we!

Best to you for 2019...health and wealth !hugs back Sally

[Aime in reply to Inca]

Yes, Health is definitely the most important! E hugs and fingers crossed for a healthy 2019 for us all.xxxx Aime😻😻

[mhos61]

This is usually hydrea induced. Mine are slightly raised. Someone on the forum once said, it’s a sure way the health professionals know that you are taking the medication. So it must be expected!

Are your platelets still within an acceptable range? Infections often raise platelets too. They may have reduced by February.

Mary x

[Inca in reply to mhos61]

Yep ,right down to 68 !!!dont know whether to cry or hide away !!

[catwoman2015 in reply to mhos61]

Hi Mary My platelets have been rising on all blood tests over year now so there not in range now can’t see them going down now unless he ups my dose I guess then that could affect the large red cells , it’s funny ol condition we all have eh many thanks for reply Holly

[Tico]

Hi holly, read your post with interest as my platelets can at times go into very high terroritory & high mcvs, (mean cell volume). just before new year drs surgery phoned & said they had put a prescription in for iron tablets in the pharmacy for me. Only took 1 & within hours gave me upset stomach so decided i would take no more. I had been given a full breakdown of my full blood counts xmas eve & being busy didn't have time to properly look at them. When surgery called decided to & discovered plts back in range, high mcvs & high mchs in my blood, my b12 and folate levels were within range. My hemoglobin had dropped to 10-4 in november but through diet had improved to 11. I did my own research to find out why my mcvs were consistently high, after ruling out low b12 & low folate other issues such as heavy alcohol use, i discovered certain cytotoxic drugs,at the top of the list was hydroxyurea (hu). Phoned cns & gp. Cns said not to take iron tablets because of issue with stomach & have another blood test in 3 weeks, gp calling today. Hope the answer on high mcvs as helped. Atb,tina🤗

[catwoman2015 in reply to Tico]

Thank you Tito your post very helpful many thanks Holly

[Sand-Dancer]

Hi Holly. Happy new year to you too! I think low B12 or low Folic acid can cause macrocytic anaemia. I had very low Folic acid in October apparently and was fixed with a supplement. Maybe ask about both next time? How much Hydroxy do you take? L x

[catwoman2015 in reply to Sand-Dancer]

Hi Lesley happy new year to you also thanks for reply , I only take one Hydroxy daily for last 2 year and my heam knows there been creeping up last year with every blood test but wasn’t concerned , but I was being that I don’t won’t them going up all time and not down anymore ! He not aware of these latest blood results because he leaves me every 4 month my Gp will do extra blood test in between . So I see heam end Feb where I will have routine blood test week before as usual I will deffo ask for supplements etc when I see him I don’t drink alcohol hardly just odd rose and eat my green haha I think my body has just got used to low dose of hydroxy now love Holly x

[Searcher56]

Yes. Macrocytosis does not really do any harm. HU causes it. Prof Harrison told me at my last appointment that I have macrocytosis and it is a sneaky way a doctor can tell if a patient has been taking the medication.