SCT Journey update No.10

[LFCLove]

Hi, next update to share where I’m at. It’s now +98 days post transplant and bloods are going a little south and have picked up a virus (adenovirus) which my body can’t rid on its own. Have felt ok apart from a cough which was dry several weeks ago, but now is chesty.

Am just about to finish my immune suppression drug (Tacrolimus) so Drs have requested a course of intravenous antibiotics every 2 days!

It means a very early start in the morning, a 3 hour drive to Addenbrookes and various drugs, fluids and antibiotic infusion. Then a 3 hour drive home. Staff have been very helpful and arranged transport too.

Writing this in the Haematology day unit, one handed as am hooked up with fluids pumping!!

Although my T-cell count has risen from 7% - 19%, I suspect that if the white and red cell counts remain low, they will request another batch of blood products from my lovely donor all the way from Germany.

Just a small bump in the road, but hopefully will get back on track soon.

Love and best wishes to everyone, and thank you for your posts too, they do make a difference.

G.

🤓

[Scaredy_cat]

could you have your iv antibiotics at a local hospital to save your drive?

[LFCLove in reply to Scaredy_cat]

I did ask and they contacted my local haematology team and they apparently don’t! From talking to the staff here, it’s a very rare occurrence and they had to read up to remind themselves of the procedure!! Still can’t believe it couldn’t be done elsewhere, I mean, it’s just an infusion, fluids and drugs…… still, I’ve started so will finish….cheers G.

[PT99]

Thanks for the update. Trust you’ll get back on track soon. Best wishes

[Mishie14]

What a speed bump but your courage is again showing to overcome it. Celebrating your 98 day anniversary and sending a virtual hug from Michigan USA.

[RoundTheWorld]

Good to hear from you. Sorry to hear about the bump in the road, but hopefully it will stay a small one. Those round trips sound exhausting; glad you have had lots of support from the staff.

Make sure you take your winter woollies - it's quite parky out there! Wishing you all the best.

[saltmarsh]

Thanks for the update. You are a font of positivity which is invaluable to many of us. Good luck getting this under control and best wishes moving forward.

[Solyesh]

Thanks for the update - good luck!

[hunter5582]

Glad to hear that you are doing well overall. Sorry to hear about the long commute. There really ought to be better way to access a simple IV antibiotic treatment. Hope you get through this part of the process soon.

All the best.