Can you help? I was diagnosed with PV in June last year. I am pleased to say that I have had really good care from my GP and the haematologist ever since my diagnosis. The PV is being well controlled by Aspirin and a venesection about every 6 weeks and the blood numbers are fine. But there is a fly in the ointment. I am iron deficient and this is causing problems like feeling washed out etc. The main problem is recurring cellulitis on one leg. I'm just in the middle of a course of antibiotics for my 3rd bout of cellulitis over the past 7 months. The haemo has never directly put it down to iron levels, but internet sites do make the connection. The cellulitis is a minor inconvenience in the scheme of things, but the lack of iron generally makes me feel like a wet rag. I know that iron supplements are out because that would send the red count rocketing. I am realising how much these MPNs are so much a balancing act.
My dilemma is I wonder whether going onto Hydroxy would mean fewer venesections, so perhaps less of an iron problem, or if I would just be swapping one set of problems for another.
I'm sorry to be such a moaner, when my problems are very minor compared with what others are going through. I just wondered if anybody else had had a similar problem with iron and what did you do about it. Many thanks. (What would we do without this wonderful site?)