hip replacement with jakafi controlled polycythemia

[titanswomn]

I am 71 years old. for a year I have had worsening troubles with my hip. I've followed the protocol to heal with physical therapy, shot in hip, RICE etc.

Two weeks ago I was told by my orthopedic surgeon that I need a hip replacement since I had a congenital, inherited hip the in need of a change! Anyone else faced this? any troubles?

[JediReject]

Hi titanswomn, sorry to hear of your need for a hip replacement but it should be ok if your bloods are ok though obviously there may be a slight increased risk of clotting?. I guess your Hem will liaise with the surgeon to let him or her know of your PV. I think there may be advice on MPN Voice site about having surgery with an MPN.

I haven't had a major op only minor surgery recently so I can't speak from experience but I wish you luck.

Chris

PS my dad needed a hip op several years back and chose not to, he is now 82 and regretting that decision.

[Kelly2 in reply to JediReject]

At 82 he can still have it if he has an active way of life.

[jane13]

I was due to have gall stones out and lots of liaison between surgeon and haem. This was largely co-ordinated by the nurse at pre-op assessment.

[Aime]

Hi, I’ve had about 8 minor Orthopaedic ops in last 2 years plus a new knee and have had no issues. 😀 I get my bloods checked prior to the op and also on the day. My haem wrote to my Orthopaedic consultant for my knee op with advice and contact number if necessary.

After ops, I’ve always had heparin jabs, worn my stylish stockings and exercised as much as I could. Obviously exercise is not so easy post op to begin with but i do what physios say and have been ok to date.

Wishing you all the very best. If it’s anything like the knee op, you won’t regret it! Kindest regards Aime xx😺😺

[sand-bog]

Hi, I am 76, had a hip replacement last June with no problems. I wish you all the best with yours and sure you won't regret having it done, Cheers Sandra

[Kelly2 in reply to sand-bog]

What about blood clots? What did you take for those? Were you overweight at the time or not?

[Heidi-W]

Hi I’m 41 with pv and just has a hip replacement 2 weeks ago! I was on venesection to start with after being diagnosed in dec 17 but as my platelets rose started on the hydroxycarbamide so that I could go ahead with the hip op after great advice from prof Harrison and maz on here. The anaethetist was happy to proceed as long as platelets less than a thousand. They did a spinal anaesthetic and put me on an enhanced 3 day recovery plan and I was home after 3 nights. I’ve got to wear TED stockings for at least 6 weeks and I’ve stopped my aspirin temporarily whilst I’m on apixaban a newish oral anticoagulant. Obviously I’m only 2 weeks down the line but so far so good re pain and mobility . I’m still on the hydroxycarbamide which is good as platelets have crept up to 650ish. I am extra tired at the mo as my preop HB was 130 after all the venesections and is now only 102 which is quite a difference to my original Hb of 199 in December. Am trying to look in bright side that the drop means no rush for more venesections at the mo so added bonus of having the op. My only slight problem at mo is my LFTS bit worse ( they were already up due to large spleen) so I’m trying to limit analgesics like paracetamol. Luckily at the mo I’m managing on 2 lots of co-codamol for pain with the odd naproxen. Anyway sorry for whole life story there but hopefully might reassure you considering the op. Hopefully your haematologist will be happy to lease with your surgical team. Good luck

Heidi 😊

[Janehale in reply to Heidi-W]

Please can l ask how long you waited to have your hip operation after being referred and did you have it done in a large hospital with haematology department to hand

[Heidi-W in reply to Janehale]

Hi there,

I had mine done at the wrightington specialist orthopaedic hospital as wanted to see the pros as wasn’t sure whether they would do a resurfacing op with me being young. Darcey Bussell off strictly had one like that but apparently they aren’t as keen on them these days hence I ended up with the replacement. Once you’ve been seen by the specialist and they list you for the op they are meant to get you done within18 weeks. My hospital was just orthopaedics with no acute beds so they were happy liaising with my local haematologist. The anaethetist are important at your preop to decide if your blood levels are safe for the op.

I was listed in October but wanted to wait till easter due to work stuff but in the interim got diagnosed with the PV so the delay was helpful to get me and my bloods more normal prior to the op.

I think as long as you flag up the PV with your orthopaedic team they will be keen to see any letters from your harm team and you could mention to your haem so they can put a plan in the letter re anticoagulant etc.

Nowadays with hip ops they get you up walking either same day or next day which all helps to reduce the clotting risk alongside the compression stockings and the blood thinners for 6 weeks.

Hope all goes well for you-good luck

Heidi

[Janehale in reply to Heidi-W]

Thank you so much for your reply.I am in quite a lot of pain now after having recently opened our garden for the NGS.I was going to have a hip operation three years ago ,that is when they discovered l had PV.My platelets have recently gone up and are now 500 ,at my next blood test I am to have aCPR test to test for inflammation to see if that is having an effect on the rise in platelets.I have now decided that the time has come to have the hip replacement so thanks for your reassurance

[titanswomn in reply to Janehale]

I have had pv for 15 years. Levels are well controlled by Jakafi.

[Heidi-W in reply to Janehale]

Ah hope all goes well for you then you can get enjoying the gardening a bit more again. Good luck

[Kelly2 in reply to Heidi-W]

Were you having pain? Because they say that you don't?