What do you take when your spleen’s hurting? Mine’s been tweaking since January, and has now started aching enough to stop me sleeping at night. I’m ET JAK2+, on 2 x baby aspirin daily, platelets approx. 600K 2 months ago. I’m going to try to speak to my hospital healthcare team and was wondering in the meantime if anyone could suggest any management advice. I’m just taking paracetamol atm which wears off quite quickly. Thanks!
Spleen...: What do you take when your spleen’s... - MPN Voice
Spleen...
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tricky, probably only paracetamol, but I get something with codeine in at night which helps me sleep, from my GP.
Thanks jane13, I’ve been summoned to see the haemos in a few days so I’ll ask them about codeine then. I’m debating whether or not to take something before I go as I know they’ll palpate my spleen which makes it hurt like hell!
why does yr spleen hurt? If enlarged r u on Ruxo?
I’m not sure why, unless it’s progression? I’m only on aspirin and ‘Watch & Wait’ at the moment, but I’m JAK2+ so there’s an increased chance of progression. Plus my Mum’s PV progressed to MF so I always have that in my head when my spleen starts grumbling. Fingers crossed it’ll calm down. I think it’s possible to have a slightly enlarged spleen with ET, no?
Yes, Lucy. It is possible to have slightly enlarged spleen withET. Mine was enlarged right from diagnosis but I still went another 17 years before progression. Hope you get some answers soon
Best wishes, Jan
Hi Roy, do you have an MPN? I see that you’re selling these products that you’re endorsing. What’s your experience of them for MPNs?