I have ET, JAK 2 negative. I've been having twinges under my left ribs for a while, when I mentioned this to my GP he said it was probably "rebound" pain from my gall stones. However it has gradually increased and now I can "feel" something pressing under my lower left ribs. It is not particularly painful I just know it's there. I'm hoping to see my GP tomorrow. I haven't had any examinations around my spleen since I was first diagnosed a few years ago. I know it could be something else but I'm hoping not anything nasty! I haven't had any other sort of symptoms.
I've been on HU for over 2 years, I take 2 x 500 mg Monday to Friday and 3 x 500 mg on Saturdays and Sundays, plus a daily aspirin.
For a few months I was anaemic but my last blood test was ok on that score.
Any ideas on what I should be asking the GP? Should I request a scan and should I be getting in touch with the haematologist? My GP doesn't seem to know anything about ET.
Thank you in advance!