Supplements when on hydroxy: Does anyone take... - MPN Voice

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Supplements when on hydroxy

Petsch profile image
19 Replies

Does anyone take other supplements with ET

It take calcium vitamin D biotin and really not sure if that’s ok when on hydroxy. If so when is it taken

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Petsch profile image
Petsch
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19 Replies
mhos61 profile image
mhos61

Hi petsch,

I am on hydroxy and the only supplement I take is circumin. I think that there are members on the forum who take vitamin D. Hopefully, they will respond.

Mary x

jeanr profile image
jeanr in reply to mhos61

I just came across your post -- I was wondering do you get any side effects from curcumin? How much do you take. Best wishes.jean

catwoman2015 profile image
catwoman2015

Hi i have to take vitD on prescripton fior my osteoarthritis! im on HU daily so fine for me regards Holly

linphy profile image
linphy

Hi petsch, I take Vitamin D . I have severe vitamin D deficiency. I have ET and was diagnosed with Idiopathic angioedema and urticaria triggered by severe vitamin d deficiency, I was taking asiprin, taken off that now on clopidogrel

Lin

Petsch profile image
Petsch

Does anyone take aspirin when on hydroxy

Mazcd profile image
MazcdPartnerMPNVoice in reply to Petsch

yes many people are on aspirin with their Hydroxy. Maz

Hi

I take a calcium & vitamin D supplement prescribed by my GP and my haem is aware. I have been on hydroxy since 2012 and been taking it all that time with no issues. Best Wishes Liz

flfair profile image
flfair in reply to

Hi Liz

You need to take magnesium to balance calcium, if not you are heading for a heart attack or stroke , avoid taking magnesium oxide or citrate they are laxatives. Please read this article .

openheart.bmj.com/content/5...

Peter

in reply to flfair

Hi Peter

Many thanks for that information it is very much appreciated. Best Wishes Liz

flfair profile image
flfair in reply to

Liz you also need Vit K2 to put the calcium into your bones, watch your calcium levels. Don't take calcium and magnesium together.

Have a read drcarolyndean.com/2010/05/w...

Peter

in reply to flfair

Thanks again Peter very helpful.

PhilReade profile image
PhilReade

I take lots of supplements vit B complex folic acid omega 3-6-9 fish oils evening primrose turmeric and beetroot

flfair profile image
flfair

Hi

I take lots of supplements the most important one is magnesium, why are you taking calcium?

Peter

JaynieQ profile image
JaynieQ in reply to flfair

Hi Peter I’ve been researching magnesium supplements. Can I ask what effects it has had and how much do you take?

Thanks

Jaynie

flfair profile image
flfair in reply to JaynieQ

Hi Jaynie

I take Doctors Best magnesium caps and magnesium flakes in the bath and mag oil on the legs. Magnesium Oxide and Citrate are not good ones to take, they are laxatives. Magnesium has changed my life for the better, it has de-calcified my body, it took over two years , I no longer suffer from chronic fatigue. I take magnesium every day in one form or another. I believe MPN patients have a greater need for magnesium, I tried to take in the region of 600-800mg a day.

Peter

JaynieQ profile image
JaynieQ in reply to flfair

Thanks Peter! I’ve been craving certain foods just recently which is unlike me; peanut butter, whole meal bread, bananas, cashews... All great sources of mag so I think my body is trying to tell me something! I’m going to start on 300mg and see how it goes.

I appreciate your advice, thank you! Stay well

Jaynie

Mal42 profile image
Mal42

It's good to check out with supplements and a med like hydroxea. I hsve checked out all that i take with prof Harrison. Tumeric, vit d, fish oils, folic acid, all fine. I did ask about d ribose this week for fatigue, that is fine. I am very interested in your use of it and if it has helped and dosage. Thank you. Mal.

AngiP profile image
AngiP

Hi, I am on Hydroxy and take Vit D on the advice of my heamo, because I am always tired, also on Aspirin

AngiP

bomber55 profile image
bomber55

I take several supplements and all approved through my oncologist: Garlic, Flexseed capsule, vitamin D, Cinnamon, and Cod Liver Oil capsules

when first diagnosed I tried the natural things that were suppose to help reduce the red blood cells and did ok for a while but was not the answer completely those natural things were :garlic, dark chocolate, red wine, polmagranite -I still continue to take I think it must help my immune system somewhat as I work in Medical field and am exposed to all kinds of illnesses in hospice and so far so good and its been over a year now

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