Hi again everyone. Since writing a post I have finished my 3 weeks' radiotherapy now for breast cancer, during which time my Hydroxy for ET was stopped. I'm now awaiting an appointment to see Haematologist when I expect I will be put back on Hydroxy. Did any or all of you have to take Allopurinol for 7 days when first going on Hydroxy as I did? I'm wondering if I'll have to take this again as I remember unpleasant side effects. Best wishes to all. Fran
Allopurinol when first taking Hydroxy: Hi again... - MPN Voice
Hi, no I didn't need that.Why did you need it?
Hi. I am permanently on allopurinol, first started when I took hydrea ( I have MF) . It helps prevent gout - nasty painful tie and foot joints - something to do with the cell debris from the break down of the red blood cells ending up giving you an excess of uric acid. I haven’t had any side effects.
Hope this helps. Gout is v v painful, and allopurinol has been around for a long time.
Hi azaelea, yes i also had to take allopurinol to prevent a build up of uric acid for 2 weeks. Was told it was to protect me from gout and was also told to protect the liver. Atb,tina.🤗
Yes, I did. Good luck with your ongoing treatment.
I do hope that the radiotherapy wasn't too much of an ordeal, sorry that you have had all that to go through as well as the ET. Regards Allopurinol, I would have been put on that before starting Hydroxy, but was already on it already as some of the pain I was experiencing in my feet prior to platelet reduction was in the "probable gout" category.
I continue to take daily Allopurinol and it is helpful in reducing uric acid levels that do tend to build up if you are on Hydroxy.
Thanks for your reply Peter. I hadn't realised so many people were on Allopurinol. Will have to see what Haemo advises when next I see him. My radiotherapy went fine, thanks with only a little feeling of fatigue which seems to be righting itself now (touch wood) . Had to contend with a bad chest infection during the 3 weeks treatment but carried on. Why do these things bombard you all at the same time !! Keep well, regards, Fran
Actually, I had to take for 6 months. It has been 3 months off of it and no issues with gout
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