Just thought I’d update on what’s happening with the project. The team at Guys are picking up the ball and running with it, and it does seem to be an idea whose time may have come. I’m hoping to meet up with Melanie Dalby on 23 rd Jan before my next clinic appointment, and make whatver input and help I can. They have a first version of a mock up, I think.
The aim is to have a durable book that we can carry around in which our blood test results can be recorded so that whatever hospital or GP practice we end up in knows what has been happening to us. Having needed medical help at Aberystwyth, Worthing , Redhill , Dorking and Denbigh (for starters) durng my first year with MF it would have been so useful, and would have made the encounters much less stressful for me, and for various baffled registrars in A and E and GPs.
New Year greetings to everyone.
Rachelthepotter ( who, sadly, hasn’t done much pottery recently, but lives in hope that she will do more in 2018)