Hi guys, I've not been here too much, I have been over on the liver pages. But I thought I would give you an update. So I have been waiting for transplant for 14 with no signs of it happening soon.
My spleen is now literally taking over my body! Last scan it was 28cm, I saw one of my Heams last Wednesday and he had a good old prod of my tummy and said 'well that's almost the size of your tummy' - opps....lol....I asked him if it would get too big and if they would ever remove it, he said even if removing was an option - its now too big! well well....the only options that we have really are liver transplant and Ruxolitinib (apologies for the spelling) So I have approval for Rux, however they wont start me until after transplant - so back to square one really!
So there we go, there are other things, but that's the really good stuff for the time being. I hope your all keeping as healthy and well as possible! x