VITAMIN 'D' STUDY & UPDATES...: Post by MPN-MATE... - MPN Voice

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VITAMIN 'D' STUDY & UPDATES...

socrates_8 profile image
23 Replies

Post by MPN-MATE Admin » Mon Dec 07, 2020 8:13 pm

Hey everyone... :D

Not long ago, we were all having a short but interesting discussion concerning 'Vitamin 'D' and the Pros & Cons etc...

Hence, this report is based upon the studies of a few very large cohorts, and while the jury is still out concerning some of the findings and effects or otherwise of 'Vitamin 'D' deficiency...

I still believe and thought that some of you might be interested... (report pasted in & Reference given below)

Best wishes all...

Steve

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23 Replies
Otterfield profile image
Otterfield

Thanks for posting this. I saw my consultant last week and she was very positive about me taking a Vitamin D supplement. I'm also having my Vitamin D levels checked, which I'm pleased about as I've been getting all kinds of aches and pains lately. It would be great if they could be sorted with a supplement. I'm taking 10mcg daily as the UK NHS recommends, but I'm not convinced this is enough in winter.

socrates_8 profile image
socrates_8 in reply toOtterfield

You're welcome Jennie... 8-)

Steve

hunter5582 profile image
hunter5582

Interesting and rather significant finding about the importance of the body being able to metabolize Vit D into its active form. Certainly speaks to the importance of the gut microbiome. Thanks for posting,

socrates_8 profile image
socrates_8 in reply tohunter5582

Hey Hunter... :-)

Yes, I also found that a rather interesting point... (the bio-avaiability & that the gut biome can play such a large role etc...)

Pleasure buddy... 8-)

Steve

MPort profile image
MPort

At my list visit to consultant she prescribed a weekly dose of D3 20,000iu equivalent to 500 micrograms. 15 weeks til next appointment.In the light of the research findings in your link I now wonder if it is wise to take such a high dose in one go. Can my gut bacteria cope with it. I know you don't have an easy answer. I just think we take a step forward and find we are in a different swamp. So tricky.

socrates_8 profile image
socrates_8 in reply toMPort

Hey there MPort... :-)

Always follow the advice of your medical team... But always ask questions too...

I often email an article, (or two), to my medical doctors and ask for a response...

If you cannot do this then perhaps print one off and take it along w/ for your next appointment...

However, asking questions, doesn't always provide straight-forward solutions, as it often seems to pose further questions... That hopefully results in one's ability to keep moving forward, in my view... :-)

Best wishes

Steve

clematis26 profile image
clematis26 in reply toMPort

Could this be taken as 'spaced out over the week'? I calculate this to be 71.43mg per day. You could phone her secretary to check.

MPort profile image
MPort in reply toclematis26

That would make good logical sense. It is a small capsule so I guess it is designed to do that over the week. I have been doing a bit of research. I can't find anything on high or weekly doses. But I did find that VitD3 is a fat soluble vitamin and you should take it with fat. The article suggested teaspoon coconut oil! I take live culture yugort twice a day and am going to go back on the probiotic the gastrointestinal recommended. I will keep researching and will post when I find something. Thanks for your imput. Mairead

clematis26 profile image
clematis26 in reply toMPort

Hello again - further thoughts... do you have to buy your own Vit D? If so, check with the Pharmacist. Boots are good. I take 25mg/1000iu each day (Consultant approves). Dr Fauchi (USA) takes 6 times this amount but I am not about to follow him! I get my Vit D from H&Barrett and the advice is to take it with a meal. I would not like to go down the Coconut oil route for the sake of my waist! There is plenty of advice around - it is difficult sometimes. All good wishes, Sue

socrates_8 profile image
socrates_8 in reply toclematis26

Hey Sue... :-)

That's really interesting what Dr Fauci takes in Vit' D x 6(?) Seems excessive does it not...? However, he is a doctor & presumably knows what's best for himself, I suppose...

Stay well... :-)

Steve

Superwoman profile image
Superwoman

Thanks for posting Steve, Makes for interesting reading, shame they have not done a study on women, but still was a good read.

My Haematologist recommended that I take Vitamin D, as I could not tolerate the tablet form I use a spray instead which so far so good, I have received my letter telling me that I can apply for the tablets, but I am going to stick to the spray works for me.

I also take a live culture drink daily which helps with good bacteria, recommended to me by a gastroenterologist, so trying things to keep the old body working properly in these strange times.

Jean

socrates_8 profile image
socrates_8 in reply toSuperwoman

Hey Jean... :-)

Thanks for your reply...

Yes, the assertion is that Vitamin 'D' deficiency is more prevalent in older men, but how we do make such assertions if the same studies have not been applied to women? Great point Jean...

I am also keen to learn about the 'Live Culture' you are taking for your gut biome- health? Does it have a name as such Jean? Be interested to hear more on that topic too... Thanks Jean... 8-)

Stay safe & well... :-)

Steve

Superwoman profile image
Superwoman in reply tosocrates_8

Hi Steve, my live culture drink is called Symprove, it’s water based not milk, it was recommended by my gastroenterologist, I get it straight from them as they do a monthly subscription which makes it a little easier to buy as it’s quite expensive, if you buy two months you get the third month free, once you have purchased the first three months and you get on with it, you can continue with top up monthly. You can also buy single bottles to just try before you purchase.

I have been on it now for just over two years, it has been my life saver where my tummy problems are concerned, never looked back, I have the Mango and passion fruit flavour or you can have natural flavour.

Well worth a try.

Jean

socrates_8 profile image
socrates_8 in reply toSuperwoman

Thanks Jean... 8-)

I shall see what we have here 'Down-Under'? ;-)

fruugoaustralia.com/symprov...

Seems we have something very similar too...

Let you know if I decide to give it a try Jean... (?)

Best wishes

Steve

Superwoman profile image
Superwoman in reply tosocrates_8

That’s the stuff 😃

ladyanello profile image
ladyanello

Thanks for the information - I'm really interested in this topic.

socrates_8 profile image
socrates_8

Hey evening ladyanello... :-)

You are most welcome...

Stay safe & well...

Steve

Pte82 profile image
Pte82

Thanks for the article Steve. In addition to bacteria, magnesium levels in the body also have an influence on vitamin D. This link has information on it although I believe the magnesium levels stated in the article are lower than needed.

betteryou.com/health-hub/ma...

socrates_8 profile image
socrates_8 in reply toPte82

Hey Pte82... :-)

Thanks I'll be sure to check it out ...

Stay safe buddy...

Steve

Aldebaran25 profile image
Aldebaran25

that is very interesting indeed, thank you for this! I think we will hear more and more in the future about the role that gut bacteria play in our physiology, including their impact on inflammation, which is, I seem to understand, central to the way our MPNs evolve. Inflammation is now my key interest as I also suffer from a terrible skin rash that has been diagnosed as potential sarcoidosis (autoimmune disease, where inflammatory processes can attack any organ). My haematologist said to take Vit D, but my conundrum is that in sarcoidosis, active Vit D can be naturally elevated and taking it too high can cause hypercalcaemia (very dangerous). It is customary for sarcoid patients to be tested for the active form of VitD. From what you posted, it would make sense to test for active vit D in any case (I imagine it is a lot more expensive though). Physiology is soooo complicated!!

socrates_8 profile image
socrates_8 in reply toAldebaran25

Hey Aldebaran25... :-)

Thanks for your reply... Most interesting... Yes, 'Inflammation' is undoubtably the elephant in the room... so to speak...

Hence, diet becomes an essential tool for managing 'Inflammation' in my view...

Best wishes, stay safe & well...

Steve

Bluetop profile image
Bluetop

Thanks for posting -it is interesting that microbes in the gut are a centre for interest once more.

socrates_8 profile image
socrates_8 in reply toBluetop

The human body is quite a mystery, is it not?

Stay safe & well... :-)

Steve

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