Face and Feet hot but not red : I'm ET, I am... - MPN Voice

MPN Voice

11,299 members15,782 posts

Face and Feet hot but not red

mickey64 profile image
3 Replies

I'm ET, I am starting back on medicine (even though expert says I only need aspirin) local hematologist says its ET and I need meds, only because for the past three weeks I get this overwhelming feeling of warm/flushed feeling in my face almost like I'm hot, it starts in my neck and goes up to the face but also my feet feel Hot uncomfortable hot, not red it is almost like the feeling you get when your sunburn then the next minute I could be chilled. Numbers are no different then what they had been for months so I'm stumped. Thyroid TSH was on the lower side 0.544 on a normal scale of 0.450 - 4.500 uIU/mL. but local says normal. Just cannot figure it out since I have had the same numbers in the 800's for a year and nothing like this happened. I would get the flushing of the face maybe for a couple days but then it would go away. The only other thing was sugar was low (I'm not diabetic) 69 but local says that's ok. Thanks all and Happy New Year!

Written by
mickey64 profile image
mickey64
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Jennifer1974 profile image
Jennifer1974

My TSH is 0.17 but I'm purposefully suppressed ( kept hyperthyroid)by endocrinologist because of my history of thyroid cancer. I got the sweats when my TSH dropped to .05 or was undetectable. I've been getting itchy red hot ears for a week. What's going on?!

Peterwi profile image
Peterwi

I had a similar experience with a strange hot feeling in my head and feet before my ET diagnosis. My platelets were 700. As soon as I started to take HU it stopped, Winni

shankei profile image
shankei

Hi Mickey64,

Not sure if this is any help, I have ET and occasionally have a really hot burning feeling in my feet. My consultant said it was called erythromelalgia, which is a side effect of the ET.

Not what you're looking for?

You may also like...

Red and burning face

Hi I was diagnosed with PV 2 years ago. Recently I have been experiencing extreme hot flushes to...
suzanneh profile image

Really red faced and feeling like I was going to pass out and sweating

Hi Everyone I wanted to ask if anyone has experienced having a really red face and feeling shaky...
Blonde25 profile image

Not a pretty pic but.......

Apologies for the picture! As you can see I have an infected toe, I've had a week on antibiotics...
lizzziep profile image

Not great news :-( ASXL1

Hello all. Looking for some insight or maybe just a glimmer of light today. So, I was diagnosed...
Miriammusic profile image

Tolerant to Hydrea, giving Pegasys another try....

I have ET + CALR and taking 3 pills of Hydrea a day and my platelets are in the millions again. I...
Zeppelin11 profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.