I hope you all had a good Xmas so far and I wish you all a Happy New Year
I had my results from the bone marrow biopsy last week and it was confirmed that there were no signs of leukaemia which was a great result. My consultant was concerned with the high level of red blood cells in my bone marrow for someone of my age however he is awaiting more blood test results. He has confirmed that I am actually only one in a million of those who suffer from my form of Jak2 so its very rare.
I definitely am a lot happier now I have moved consultants and he is very knowledgeable around Polycythemeia. He has stated that he wants me to have a CT Scan next which he has organised for the New Year. The only medication I am required to take is an aspirin a day and my Venussections will be increased until they are happy that my readings are dropping as at the moment they are quite high all the time. 0.53
There was a lot more to take in on the day so I wish I recorded it but the good news is that he wants to keep me as a patient and as soon as there are more available tests he will be doing them on me.