Hi I was diagnosed with Polycythemia Jak 2 negative about 6 years ago and up until about 2 months ago i never had any symptoms apart from having to have the V section every 3 months. I am not sure if these are some of the symptoms however iIdo get tired a lot more now and as soon as i sit down to relax i want to go to sleep. My heads always feels warm and now both my knee and elbow joints seem to ache a lot of the time. I dont really fully understand what i have and its never really been explained to me by doctors but I guess I never asked enough questions during consultations. Lats time i went 3 months ago i was given a booklet to read and told to read up on myeloproliferative. I see that this has links to leukaemia which frightens me as this has never been mentioned in the 6 years i have been going to hospital. I was told in the beginning that my blood levels should take up to 5 years to get back to normal so am I reading too much into it all and worrying about nothing. Any advice or help would be great please as I am told that my condition Jak2 negative is the one that only 2% of the people suffering from Polycyaemia have.?
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