So I have my second venusection tomorrow and another one December 5th which will make three in total and I'm really hoping they are going to help with the fatigue i've been suffering with.
I had to take a few days of work last week and didn't get out of bed until 1pm and was in bed again by 9 which is so not me.
Today I feel almost normal which is great but i'm hoping the venusections will increase my good days.
My hematologist has told me though that he is unsure at this stage if I have Secondary Polycythemia or PV which is different to what I was told on my 1st visit so I'm a little confused now as I was told I had PV which the bone marrow biopsy confirmed but i've now been told the bone marrow biopsy was inconclusive as they couldn't get enough of the bone (I wimped out)
My EPO levels are confusing him though as these are low which I'm being told you would see in someone with PV JAK2 positive but I am negative.
Oh it's never easy with me ha ha
I've attached a copy of my blood results so if you guys know anything about these please let me know