Day 1: Hey Guys , well I made it. . Had Hickman... - MPN Voice

MPN Voice

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Day 1

JediReject profile image
58 Replies

Hey Guys , well I made it. . Had Hickman Line inserted and already had a wee bag of innocuous chemo down it. . Hmm. Not sure how I will be feeling in a day or 2 or 3 so thought I'd take this opportunity to let you all know I'm off and 'running'. . I have read all your comments of support and carry them with me.

Love and thanks to all . Chris

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JediReject profile image
JediReject
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58 Replies
Inca profile image
Inca

Is it Chris ?Thought for a mo it was George Clooney!!!!!!You look in fine form,keep strong,with you in thoughts,Sally

cannonfire profile image
cannonfire

Amen. Looks like a smile. Can I lift you up?

Superwoman profile image
Superwoman

Love the colour of your specs, keep smiling Chris, things can only get better.

piggie50 profile image
piggie50

Bless you Chris! You're looking good.

Keep strong - everyone is rooting for you.

Love Judy xx

Karen1970 profile image
Karen1970

Keep strong and smiling. We are all thinking of you and sending our strength on to you xx

Aime profile image
Aime

Your looking great! But if you've lost your specs they are on top of your head. 😈Sorry I didn't support you yesterday but all hugs and tons of support, sympathy, anything else you need sent to you. Love and best wishes - my words aren't as good as yours but the meaning is there. With you all the way. Aime xx😸😈

bruddery profile image
bruddery

Congratulations you have gone past the hurdle. Your strength of character will get you through all of this. Enjoy the enforced rest you'll soon be chasing the grandkids!! Good luck. Thoughts and prayers to you all. Janice

Looking forward to more of your poetry. I've thought of s great fundraiser - you publish and sell your verse. Seriously though, I'm thinking of you.

Twinkly profile image
Twinkly

Good on you ,doing so well ! We all understand your fears of the unknown ,this is just one more hurdle ,,relax and try to visualise the new you ,feeling strong and well at the end of this amazing treatment ,,the worst is behind you ,only good things to come thinking of you with positive vibes ...twinkly. X

Nickthedevil profile image
Nickthedevil

Looking good! Thought we may not hear from you for a while, so really pleased to see this pic with you looking great. Hope the wave of love and friendship coming from all on this site helps to carry you through the next few weeks,

Karen xxx

Helen1952 profile image
Helen1952

Aww well done you and I'll come and watch you at the transplant games next year you don't have to do anything strenuous you could just throw a few darts lol

Are we all calling you Chris now ? Honestly some people get new stem cells and start changing their name .

I seriously think you are a brave and fearless fellow and I'll be thinking of you and watching for updates .

Helen x

lawhill profile image
lawhill

Congratulations! Your first day and first step. You are supported, and in good hands xx Always thinking of you 😇

HelenK profile image
HelenK

Chris, I've just read your story and would like to wish you great good luck. Your positivity shines out from you and as a new convert to the power of positive thought, I think you'll do very well. Every good wish to you x

lizzieET profile image
lizzieET

Looking good Chris/JR. Wishing you all the best - your positivity & realism at same time is such a boost for everyone, I know it must do the trick for you too. Onwards & upwards. .. keep those medics on their toes with your witty repartee hehe :-). Liz x

MFBMT2011 profile image
MFBMT2011

Chemo for this is a doddle although you can sometimes taste it. Conditioning is the challenge but varies for different patients, could be smooth or bumpy passage but a short

MFBMT2011 profile image
MFBMT2011

Like phones! ....... period of a few days so you know there is a strong lightest the end of the tunnel

MFBMT2011 profile image
MFBMT2011

......,Hope you have an event less trip. Best wishes. Chris

Helpatlast profile image
Helpatlast

Well done - wholehearted support to you - and that chemo altho it feels like an ememy it will actually be your friend and silently do its work to bring bettwr days ahead - thiughrs are with you.

Hey Chris, looking good. You are going to have to drop the R from JR, you are a true Jedi. So pleased you doing good. Thinking of you Liz xx

Foss33 profile image
Foss33

Have only just logged on after some time away, sending you my very best wishes and positive thoughts. Take care x

wormwood profile image
wormwood

Looking good xxxxx

JediReject profile image
JediReject

Yeah Cheers folks, , got em in a panic last night running a high temp. . Who ever heard of an MPN patient boiling over at night??. . So twas ice packs (no paracetamol with chemo ) doc came , more bloods , and put on intravenous antibiotics in case of infection. . So it wasn't a perfect end to the day. . Today it's drugs, chemo, antibiotics, dressing change maybe. . Plenty to look forward to , oh and I may have a shave if I get time !! 😆😆😆, , by the way just call me what you like , not too offensive though. .

jeanr profile image
jeanr in reply to JediReject

Hope the rest of the day is going smoothly, its good to hear about the journey you are on---sounds as if you are keeping everyone busy! All good wishes from across the pond.

Aime profile image
Aime in reply to JediReject

Now your just an attention seeker, admit it! Your doing great, these little ups and downs make us stronger. With you all way.xx aime😈😺

Tinkerbell13 profile image
Tinkerbell13 in reply to JediReject

Call you what we like....ummn....Inspirational, brave, fun, poetic, trying to think of acrostic word with the I and B and F and P and come up with...Bifp, the sort of dream word for a ventriloquist! a sort of lisp gone wrong! Hope you have better day tomorrow and much love and encouragement flow from us all. Tinkerbell13

beetle profile image
beetle

Doubt anyone could be offensive to our current hero! No need to get hot under the collar thinking about it though! I'm not sure - do we run a temperature when we boil over at night? - I don't know, never bothered to take it! Hope they didn't chill you too much with the ice though. You are in good hands and with all the positive vibes coming your way you are in a good place (doubt you think it's too good at the moment!). At least you have started your steps into the unknown and that has to be better that the anticipation. Did you know that fear stands for False Expectation Appearing Real? That will give you food for thought in between all your forced activities of the day. Keep strong, my friend. Jan x

lizzziep profile image
lizzziep

Well I've thought of a few things to call you! However I'll stick to Brave Jedi!! Hope all goes well for you. If good wishes help you'll fly through the treatment! X

linds profile image
linds

What a grand photograph, your smile is quite cheeky. Thanks for thinking of us whilst we are all thinking of you xxxx

Linda

Good luck and best wishes. I am just glad I'm too old for this procedure.

Sally

jazzyb profile image
jazzyb

Great pic Chris! You are so brave, keep strong & hope you have a better night tonight xxx

YogaLover profile image
YogaLover

Never expected when I joined site to get sent pics of a good looking guy in bed ...

Love and best wishes Ruth xx

Hi a face to the name , and your. looking very well if i may say so ! and no doubt your have the nurses wrapped around your little finger ! so cheeky chappie keep well and stay strong best wishes Holly xx

Helen1952 profile image
Helen1952

Just sending positives vibes today .

Helen x

babbittybumble profile image
babbittybumble

Hello Chris. Just adding our good wishes to you and you family. Take care Gill.

JediReject profile image
JediReject

Love all the comments , , great to read through when you literally can't go anywhere, really helps you along. . Been hooked up for 5 hrs and 1 small bag of antibiotics to go yet. . . And some tablets. . I'm in good spirits. Chris Xx

darcey profile image
darcey

Hi Chris

Sorry to hear your in hospital, good luck with the treatment. I agree you are a very brave Jedi .

All your help and kind advice to us, if we can help a little with our posts and good vibes & good wishes.

Love Annette x

Twinkly profile image
Twinkly

Good morning J,R. Iv just had a message from my good buddy Louise ,she lives way up by the lakes ,you remember ..she is having a problem getting through to you ,so I'm sending to you her love and good wishes for a positive result to this treatment you are having just now..we are all thinking of you lovely boy..sending you ooodles of hugs and old ladies kisses ,,,till your cheeks are sore !!! Twinkly xxx

JediReject profile image
JediReject

Cheers you 2, , 3 if you count Louise , , I'm not feeling too brave , maybe a tad lightly battered. . Old lady kisses eh Twinkly, , no doubt they are delivered with 'experience' behind em, , you aren't one of those Grans who slobber on her handkerchief to wipes

your lippy off a kiddies face. . Mine used to do that. 😗. Take care all xx

LRH1977 profile image
LRH1977

You certainly inspire so much positivity Chris! Keep your chin up, all the best :)

KeithGW profile image
KeithGW

Stay positive .Hope all is going well .

JediReject profile image
JediReject

Thanks guys, , things are ramping up a tad , , so got the sickness, , not too severe yet. . Good to know others are willing you on . . Chris xx

Helen1952 profile image
Helen1952

Hope the sickness doesn't get too severe for you .

Still thinking of you .

Helen x

Nickthedevil profile image
Nickthedevil

Really hope the sickness doesn't last too long

Karen x

Phelpsy profile image
Phelpsy

So good to hear from you , you look great

Keep up the good spirit Buddy , sending you huge big fat hugs & get well wishes ,

Pam x

harleydavidson profile image
harleydavidson

Hi Chris. Been away from my computer for a few days, visiting with my daughter and granddaughter but thought of you frequently and wished for you in a wishing well. Hope you are coping. Mel xx

JediReject profile image
JediReject in reply to harleydavidson

Thanks Mel I hope you had an enjoyable few days and had a Grand-daughter 'fix'. . I'm OK it's a Roller coaster with ups downs twists and turns quite unlike anything you might want to experience, you just have to stay focused on a successful outcome hard as it gets. . Cheers Chris x

harleydavidson profile image
harleydavidson in reply to JediReject

I can't imagine how awful it must be, my dad had MF and was never given this opportunity, so I so want this to work for you. I guess it has to get worse before it gets better and you are so strong and have the right mind set, if anyone can cope, it's you!

I had a perfect and very much needed grand-daughter fix thank you x

JediReject profile image
JediReject

Good Mel I'm glad about that , , , you can't beat a fix like that x

buddin11 profile image
buddin11

Best of luck to you JR!…gail

JediReject profile image
JediReject

Thanks Gail, go in as expected must got a nuisance cough which they keeping eye on, , , cheers C

janesid profile image
janesid

This is such an amazing group. Feel the support and know these people care. Good luck, stay strong.

JediReject profile image
JediReject in reply to janesid

It is Jane sid and I do feel all the support , , doing my best to stay strong it's a very tiring process in the initial week when you see what your body is hit with I'm surprised I can stand up. . . Cheers for your best wishes. Chris

Helen1952 profile image
Helen1952

Hope everything is going to plan today and sending you positive vibes for an excellent outcome .

Helen x

JediReject profile image
JediReject in reply to Helen1952

Helen , sisters cell shot up line in record time, , I'm OK , waiting for red cell top ups to be put in now x

piggie50 profile image
piggie50

Me too Chris, thinking of you. Xx

JediReject profile image
JediReject in reply to piggie50

As above , , all appears to be going OK xx

piggie50 profile image
piggie50 in reply to JediReject

Good good! I'm a bit ignorant I'm afraid, how do they harvest the stem cells from your sister? Is it similar to a venesection or are they taken like in a bone marrow biopsy?

Thank

Judy

Helen1952 profile image
Helen1952

Good news .

Happy new stem cell Day

Helen xx

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