HU not a fit for me

[Normangirl]

I am no longer on Hydroxurea was not the right fit for me. After consulting with MPN Specialist concerning side effects, he moved me to Jakafi and have had great results with this. Was diagnosed with ET in fall of 2019. I am an 89 year old female and thriving. Live alone with no help and have an active social life. Retired from publishing career 23 years ago.

Good luck. I can only reiterate advice Hunter gives to be your own advocate, do your research and find the care team that meets your needs. When things weren’t working for me I was told I had no other choices, I didn’t accept that and.never looked back.

[Beachbud]

Thanks for sharing. Terrific to hear that Jakafi is working so well for you and you're thriving!

[Mostew]

You are an inspiration to all. Long may your good energy continue.

[ainslie]

great post, pleased Rux is working well for you and yes never give in, persevere

[hunter5582]

Outstanding mews! You prove that assertive patient receive higher quality care. Congratulations on the effective self-advocacy.

[Mieshie]

Love your message! Very happy you are doing well and in charge. Stay safe.

[saltmarsh]

Well done. Thanks for the post.

[Dojojojo]

You are truly an inspiration. Hope for us all. Thank you so much for sharing your success.

[Threestreams]

great to hear good news .. all the best

[PHGR]

What side effects did you have? Glad things are going well for you.. Keep being strong!

[Maurabawn]

Go you! So uplifting to read your post! You are wonderful!

[Nerjalover]

well done you!

[Gaithersburg]

That's fabulous to hear how you're taking control - good for you.

[lizzziep]

Glad you’ve got something that suits you. Long may it continue!

[Timjonze]

love this - well done for sticking to your guns and finding the right treatment for you

[bluebird567]

Thank you for your inspiring post. I'm so glad to hear you are feeling great at 89 years. Wishing you many more wonderful years. x

[Hopetohelp]

well done and thanks for all that lovely positivity to encourage us

[CalrAustHooman]

Hi, glad to hear your Hem advised you so well I don't think Hydroxyurea is a good for for anyone, but for years it was the only thing on the menu. I was on it from 2007 for ten years and boy was that awful. the dose has to increase as your body gets used to it, it gets quite toxic. I'm glad you had a better drug available. All the best, glad to hear life is treating you well.Kind regards, Sally.

[Meatloaf9]

Thank you for posting. It is great to hear a fabulous story as yours. Keep it going. Best always.

[Cja1956]

Glad jakafi is working for you. Hydroxyurea was awful!

[Jennytheb]

Well done with your positive attitude, certainly good to not give in, especially when they told you nothing could be done!! Carry on with this!! Good luck

[WIL2US]

Great news! You inspire all us MPNers

[SpendyWendy]

wonderful post! Well done to you inspiring lady!

[azaelea]

great to hear your news. I too am 89 and Hydroxy seems to be tolerated by me . I’ve been taking it for 7 years . I haven’t felt so great recently though and keep having recurring U.T.I’s and lower abdominal pain which I think may be related to Hydroxy. So glad you have self advocated, which I try to do also and research as much as possible. I have ET JAK2. Best wishes.