Sharing info on Taking Busulfan for ET

[Tinkerbell13]

Hi everyone and a very happy, and as much as possible, healthy new year to you all. Is there anyone around who is on Busulfan? Should love to speak to someone on this drug. Am on it for ET and having problems....Tinkerbell13

[beetle]

Hi Tinkerbell. Busulphan is not often used nowadays. Is there a special reason why you are on it? I was on it many years ago and also had problems with it.

[Tinkerbell13 in reply to beetle]

Hi Beetle, so good of you to reply (the only one so far)...reason on it is I reacted v v badly to Hydroxy, also nonstop headaches with Anagrelide, then had couple of stroke like incidents, so medics worried re serious stroke and reckon this one is a last resort...having really bad heads all the time, and sore throats and generally feeling very unwell, and reluctant to carry on, as without drugs, felt totally o.k. Should be most interested to hear what happened to you and anything you might add. Best wishes, Tinkerbell13