I thought it was a really good summary that might save a lot of effort in trying to explain our rare condition to doctors who've never heard of it. I've sent it on to my own GP to have added to my file. Might be handy for some of you!
S x
PS: I'm fairly sure the article is accurate, if anyone spots outdated/inaccurate statements in there please drop a comment here
Written by
IrishSarah
To view profiles and participate in discussions please or .
Oh really, I wonder is it blocking your browser maybe 🤔 I have it as a pdf if you’d like me to email it to you just drop me a message and I’ll do that no probs x
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.