MPN Voice

MPDlife June 2014 newsletter

The June 2014 issue of MPDlife, the newsletter for people with MPNs is now available to view and download at or if you prefer we can email or post a copy to you, please email with your email/postal address

In this issue you will find:

•New test for myeloproliferative neoplasms – Dr Jyoti Nagalia updates readers on an exciting MPN research development of a new blood test that can be used to diagnose the vast majority of patients with MPNs

•You are what you eat – Louise Broughton shares how radical eating changes have helped her to overcome debilitating side effects of medication and her PV

•Drugs trial success – Violet Slade started on a drugs trial in August 2013 and shares the transformation it has made in her life

•Patient advocacy – Jon Mathias, MPN Voice Chairman, explains what it is and why it is getting more important

•Fundraising update – Marilyn Webster, MPN Voice Fundraising Co-Ordinator, updates us on fundraising events taking place in 2014

•Living with MPNs Day 2013 – the November 2013 Living with MPNs day was fully subscribed with over 200 delegates from around the UK and Europe attending the School of Oriental and African Studies in London

•New leaflets – we have updated our range of literature with new leaflets on ET/PV and MF and drug leaflets for various MPN medications, all leaflets can be downloaded and printed from the website or if you prefer we can post them to you, to view the leaflets please visit our website -


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