Video of the MPN Voice ‘Virtual’ Patients’ Forum – Manchester

[Mazcd]

Held on Monday 21st June 2021

The video of the forum is now available to view on the MPN Voice YouTube channel. You can also view videos of our previous virtual forums and webinars on our YouTube channel.

youtube.com/channel/UC-S_Ic...

The MPN Voice ‘virtual’ patients’ forum, Manchester, hosted by Prof Tim Somervaille, The Christie NHS Foundation Trust, Manchester, Dr Rachel Brown, Manchester Royal Infirmary, and Dr Rowena Thomas-Dewing, Salford Royal NHS Foundation Trust, their talks feature diagnosing and treatment of ET, PV and MF, and current trials and studies.

Maz Campbell-Drew talks about MPN Voice, ‘who we are and what we do’ and Louise Broughton shares her experience of PV from her diagnosis and managing her symptoms.

The panel Q&A session with questions from the audience, also included an update of the findings of the recent study conducted by Dr Bethan Psaila, Oxford, looking at COVID antibody response in people with MPNs.

The forum is chaired by Jon Mathias, Co-Chair MPN Voice.

The breakout groups are not included in this video for reasons of confidentiality and privacy.

We would like to thank Prof Somervaille, Dr Brown and Dr Thomas-Dewing for taking part in this forum, we are very grateful to them all for giving their time to support the MPN community in this way during these very challenging times. We are also very grateful to Louise Broughton for sharing her MPN journey. And a huge thank you to the Guy’s & St Thomas’ Commercial Service Directorate team for all their help and assistance in producing this forum, we are very grateful for everything, thank you Danni and team.

[Helpatlast]

Thanks - although I attended I will take a look again, it was such a helpful event - and I really thank all of you for the hard work and kindness put into it all, such a support and lovely to connect with all via the infamous Zoom. The breakout room was so supportive. Hope you got that well deserved large piece of cake and chocolate after too Maz!! Jill x

[Mazcd Partner MPNVoice in reply to Helpatlast]

Hi Jill, thank you for the lovely feedback, really glad you enjoyed it, and yes I did indeed have a huge slice of cake and chocolate. Maz x x

[JackLina in reply to Mazcd]

AND chocolate? You deserve it! That was a brilliant, informative forum. Thank you Macz

[Mazcd Partner MPNVoice in reply to JackLina]

yes indeed JackLina, just couldn't help myself!! 😀

[jillydabrat]

Super impressed with the forum video. Well presented by everyone. I hope that more forums can be presented this way as I won’t be mixing with any crowds but don’t want to miss them. Congratulations to everyone involved.

[Mazcd Partner MPNVoice in reply to jillydabrat]

Hi Jilly, thank you for the lovely feedback, we will be holding more virtual forums this year with teams around the UK, so you won't miss out. Best wishes, Maz

[mhos61]

Thanks Maz and all involved. Amazing what you can pull together in these extraordinary times. Love the fact that I can watch it on you tube in my own time too.

A huge well done! 👍

[Mazcd Partner MPNVoice in reply to mhos61]

Thank you, we are so grateful to the haematology teams who are supporting us with the virtual forums, especially during these challenging times, and it is great that we can keep in touch with our MPN community in this way and that so many people can watch the videos, like you, in their own time. Maz

[Susana7]

Hi Maz, just to echo what others have said, thanks so much to you and all involved in putting together this excellent virtual event. I would not have been able to attend in person, given work, so the virtual format was extremely convenient. Very interesting Q&A - glad that made the video - with the (very preliminary) COVID resistance findings and discussion on the necessity or not of BMBs. Susana x

[Mazcd Partner MPNVoice in reply to Susana7]

Hi Susana7, thank you, really glad you enjoyed it, we are looking forward to the others that we are planning. Best wishes, Maz x

[IrishSarah]

Great work Maz, and very much appreciated 💚

[Mazcd Partner MPNVoice in reply to IrishSarah]

Thank you so much Sarah, very kind of you. Best wishes, Maz x