The March edition of MPDlife - the newsletter for people with MPDs is now available.
NICE recommendations for Ruxolitinib – latest news on the preliminary decision taken by NICE (the National Institute for Health and Clinical Excellence) not to recommend the use of Ruxolitinib for treating disease related splenomegaly or symptoms in adults with MF
Update on UKOSS (the UK Obstetric Surveillance System) research into MPD and pregnancy outcomes – Dr Sue Robinson, Haematologist at Guy’s & St Thomas’ Hospital explains the background and progress of the study which was launched in 2005 to survey a range of rare conditions in pregnancy
Patient story – Jennie Barnes has ET and was told last year that it had transformed into leukaemia, Jennie has shared extracts from her honest and moving blog she wrote following the news
Benefits and financial help for people living with MPDs – working age and pension age benefits, a brief guide to benefits/financial help that may be available to people living with MPDs
Epidemiology study – the study has now moved onto the next phase with recruitment into the pilot study starting March 2013
Fundraising events update
You can download your copy at: mpdvoice.org.uk/wp-content/...