Hi

[Amelia2018]

Hi iam new to this , I suffer with really bad migraines all the time I first started with them when I went on contraception a year after but I aren’t on it anymore there getting worse every day I was put on some tablets to help with it also for my depression as well and anxiety what shall I do? Iam at Doctors on Thursday seeing a nurse for blood tests , any advice? Thanks Amelia x

[MaryF]

Hi do any family members past or present have autoimmune disease including thyroid? Or early heart attacks, strokes or miscarriages and stillbirths? If any of this sounds familiar, come back to me. MaryF

[Amelia2018 in reply to MaryF]

My cousins had a miscarriage and so have I , my grandad had heart attacks x

[Amelia2018 in reply to Amelia2018]

I think my nana had still births and a stroke as well x

[MaryF in reply to Amelia2018]

In view of this history it is vital to get tested, do all three tests and if it looks likely, a patient forum I help to administrate on this platform contains a list of Specialists across the UK who understand Hughes Syndrome/APS also known as Antiphospholipid Syndrome and Sticky Blood, Unfortunately a condition often missed or dismissed by neurologists. MaryF

[MaryF in reply to Amelia2018]

Sometimes a condition called Hughes Syndrome/APS can be missed, and at times somebody with this condition will also have a thyroid condition. The three blood tests are here: It might be a good idea to rule it out, also make sure they look at your thyroid, also D, B12 and Iron levels.

Anticardiolipin antibodies (aCL)

Lupus anticoagulant (LA)

Anti-beta2-glycoprotein-1 (anti-B2GP1)

MaryF

[Amelia2018 in reply to MaryF]

Thankyou x

[Lynniel]

Hi Amelia I’ve had then for 2 years on and off I now get a spinning sensation then a bad head it’s awful then followed by anxiety , doc has put me on beta blockers to c if that helps I’ve also changes my diet don’t know if it will do any good , good luck with doc don’t let him fob u off let me know how it goes lynn x

[Amelia2018 in reply to Lynniel]

I’ve had them for a while I aren’t sleeping either at all so that’s making it worse , iam seeing the nurse tomorrow if I feel up to it x

[Lynniel in reply to Amelia2018]

Hi Amelia did u go and c the nurse , if so how did u get on do u feel any better x

[Amelia2018 in reply to Lynniel]

Hi you ok? I slept in iam there in the morning to see a doctor, I haven’t slept at all for 3 days x

[Lynniel]

Yer not too bad just fed up with it really , good luck for tomoz u poor thing not sleeping try some hot milk that helps me to sleep let me know how it goes x

[Amelia2018 in reply to Lynniel]

Good and shit in it! It’s with my mental health as well they’ve increased my tablets today and thankyou xx