Hi, this is my first time posting here. I’ve had chronic migraines for 18 months, diagnosed by a neurologist after having a bad spell of health and discovering hypothyroidism too. I currently take 80mg Amitriptyline for migraines, 75mg Levothyroxine and 25mg Liothyronine for thyroid, 10mg Nifedipine for Raynauds and asthma inhalers.
My headaches started as stabbing pains on top of my head, pain was so bad it would stop me in my tracks, would last up to a minute, get them 10-20 times a day. After a while the pain was less intense but my scalp was very sensitive, and I couldn’t bear bright light or loud noise. I had bad fatigue, short of breath and generally just not like myself. I’m usually very active and enjoy running but couldn’t do much for a while.
The Amitriptyline helped for a while, certainly with my sleep. It’s taking a while to my thyroid levels optimal but on the right track I hope. I was on the Mirena coil for 5 years and had it removed in March with the idea of having a copper coil instead, but they couldn’t put it in at the time, maybe fibroids, and then we moved into lockdown so I’m currently on no contraception.
I still get migraines but they’d usually last for a day and sleep or painkillers would help. But recently I had a migraine that lasted for over a week, totally floored me. Ibuprofen, cooling masks, 4head, nothing worked. I felt nauseous and lost my appetite, which I usually don’t. I found it hard to go outside as the sunlight would make it worse, even on a gloomy day. I took a strong dose of codeine which helped a bit but can’t take them for long, so contacted GP.
They suggested increasing Amitriptyline to 100mg and trying 25mg Topiramate, increasing to 50mg in 2 weeks. I’ve got on well with Amitriptyline, but have read some bad reviews of Topiramate so wondered about other people’s experiences? Thanks for your help!