Back on delay for TIL: HSV had no change... - Melanoma Caregivers

Melanoma Caregivers

Back on delay for TIL

missyrand profile image
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HSV had no change. Boo hiss. So no admission on Sunday

Next blood draw Monday. And now all the imaging must be redone too: CT, PeT and brain MRI. Everything at square 1 except the TIL cells are waiting at the hospital for transplant.

Yesterday was another Terrible, thanks for asking day. Today we took ourselves on a mental health day trip to St Michael’s Island in MD and did not talk about cancer.

In good news, both our mothers are improving thanks in large parts to our sisters

Peace from the Chesapeake Bay Bridge

Missy

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5 Replies

So frustrating! Hang in there . A no cancer day trip sounds like a perfect decision .

kellyOd profile image
kellyOd

So happy you guys had a good day ❤️ I am very close to the bay bridge; it’s beautiful as well as the history behind it. Sending peace 💪🏻❤️

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SGHSweethearts

Oh so frustrating. Sending prayers that everything comes out well on Monday, and Wayne can get the clinical trial started. Glad you were able to have a nice day today. Things are also on hold for my husband. He has been off Opdivo for 5 weeks, going for 6 more. It looks like it may be the end for this treatment. Trying to stay positive until after scans in June, and then new decisions.

Michele

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Michele

What are your “between times” strategies?

Missy

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SGHSweethearts in reply tomissyrand

Missy,

We really have no between time strategy. Our oncologist said that the Opdivo is still working, it is actually over working. His esophagus, and stomach had tons of PD1 in it. We are praying hard that things stay status quo until scans in June. Then I don’t know what they are going to do. I have a feeling they want to be in a wait and see mode, and that frightens me so much.

Michele

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