Pacing and heart rate

[siannie]

Hello new to this forum.

I have Hashimoto disease and was diagnosed last April with ME/CFS . I see an endo privately who closely monitors my thyroid,vita etc .

This April I was also diagnosed with serotonin deficiency as I was really poorly over the winter and ‘crashed ‘ ?

I am not feeling better in fact feel I’m getting worse with the CFS . Everything is such a struggle. I’ve always been on the go, rushing around etc and suddenly find myself unable some days to lift s hairdryer, wash a pan, cook - you know what I mean .

I work 2 days a week, thurs and fri but I feel absolutely exhausted by the end of the day probably not helped by the fact I was already shattered before I got there .

I’m trading up on heart rate and pacing.if I’m right according to my age (60 soon) my max rate should be approx 95 (220-60x0.6). Is this correct . My understanding is I need to try and keep my heart rate below that and if it goes above I’m doing too much . Surely I’m misreading or understanding this as my heart rate throughtout the day is always in excess of this .

Can someone please advise.

I am so scared of getting worse and want to do the right things to

a) help me come to terms with what’s happening

B) try and heal my body by not over exerting myself

C) take the right vitamins etc

I’m Vit D deficient (take 20000 iug x 2 week )

I take folic acid

Vit b12

Selenium

Vit k2

Thank you in advance - any advice greatly welcomed

[cwill]

The Workwell Foundation have lowered the figure to 55% of MHR and there is a discussion as to whether women should start with less than 220 in the standard age calculation. So my advice is to believe the HRM and try to adapt accordingly. Standard advice is to stop or alter all your activities to make sure that you are only over your maximum HR in 2minute bursts and get 3 times the amount of rest than any activity. Rest is defined as lying in a dark quiet room doing nothing but breathing.

It can be hard to accept such limitations in the early stages but that is when it is most crucial. Rolling PEM may be the result of simply living but if you have any choice at all adapt your activities as described above. We gain a bit of control and get better at predicting PEM responses.

Also my issues started as yours did with undiagnosed AI hypothyroidism and B12 deficiency wrongly stated as ‘fine’. Injecting B12 alternate days (the peripheral neuropathy protocol) massive doses of Vit D, and NDT with T3 have been necessary for me. Within 24hours of starting the NDT my brain showed a massive change. Unfortunately our doctors either don’t know this info, or don’t appear to care. I have yet to meet an NHS one that could help.

So keep doing what you are doing. No doubt you are a member of the Thyroid UK group here? Follow their advice re nutrients as they are great. Good luck!

[siannie in reply to cwill]

Thank you for al that info. It’s all a learning curve 😳