Hi there. This is the first time I've posted on here - I've been visiting the Thyroid site for quite some time now, and have ignored the fact that I had a diagnosis of what the doctors called ME/CFS in 2007 when my health totally collapsed after being bullied for years. I have treated it as dismissively as the doctors - a kind of side issue. My eye was caught by the ME week banners - and I'm now thoroughly perplexed.
The fact that I have ME is totally ignored by my doctor - and I mean totally. As far as I'm concerned, it's a bucket diagnosis to her. She offers absolutely no help or advice other than painkillers - which either don't work or don't suit me, and I've been left to find my own way through, which is why I've been all the way down the thyroid toute ( although with good reason: I had a total thyroidectomy in '84 and have never really been on top doh since).
In fact, my OH and I have spent all of our small savings on trying to get me better. I've seen a thyroid doctor who withdrew from the register out of sheer disgust and treats privately, a Belgian functional medicine doctor who cost a fortune and with whom I got much better but when the money ran out it was ta tah, and a series of endocrinologists who were either NHS or private again with whom i have fought over my treatment of my thyroid (I take natural dessicated thyroxine) but not one, not one ever over the years, has even alluded to ME.
To say I am defeated is an understatement and I seem now to be right back at square one. Feeling weak, exhausted at the slightest stress or over minimal activity, in pain all the time although the intensity varies, mentally tired - I watch TV during the day because I get too tired to read ... is this it? Is this my life?